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  • About Me

    Image of Robbimom

    Robbimom

    Female, 41
    Idaho Falls, ID, USA
    Member since April 17, 2008

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • New Meds Actually help !!!

      Mood March 6, 2009 2:31pm

      They started me n Lyrica bout a month and a half ago. We are now at a good dose. The Fibromialgia  is getting under control, less pain = less …

    • If Everything Changes Why is It Sill The Same??

      Mood February 27, 2009 11:38am

      Well, here it is the end of February already.  My health still sucks. Wish I could stop losing weight. I went from 30lbs over weight to 35lbs …

    • Journal Entry for December 4, 2008

      Mood December 4, 2008 9:34pm

    • A Very, Very bad day

      Mood November 26, 2008 6:25pm

      I got my epidural for my upper back yesterday, finally. It was only about 2 months late. I was so tense that the numbing shot was horrible.

       

      I …

    • No Thanksgiving this Year

      Mood November 25, 2008 12:19am

      This year We won't be having Thanksgiving. I always cook a big dinner for Thanksgiving and Christmas. But not this year. No money to buy the …

    Read Journal

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  • Goals

    Progress

    50 %

    Goal End Date is Dec 31, 08 315 days ago.
  • Support Groups

    • Close Common Variable Immunodeficiency

      I am married, 17 years. I'm a mother of 3 teenage girls and a 4 yr old son. I was diagnosed when I was 26. It was a result of cepsis and almost dying. I also have a myriad of other health problems now. UGH.

    • Close Esophageal Cancer

      Although I do not have esophageal cancer YET, I have had Berrett's esophagus (pre-cancer) for about 7 years now. The doctors tell me that with my immune deficiency (CVID) I will probabvly progress into cancer, it's just a matter of time. I prefer to be knowledgeable about my health issues so that I fully understand what is hapening.

    • Open Addison's Disease

      I was finally diagnosed with Addison's in 2002. I had problems with severe dehydration. (in the hospital 2 to 3X a month) Sever fatigue was also a major problem, especially with 4 kids.

      Treatments

      Florinef Somewhat Helpful
      I still get dehydrated but I don't have to go for I.V. support all the time anymore.
      Prednisone Somewhat Helpful
      It helps with the fatigue somewhat. I have a catch 22 as I can only have minimal amounts of steriods because of my CVID because Steriods supress the immune system which already only works at about 60.
    • Open Breakups & Divorce

      Treatments

      Couples Counseling Not Working
      We met with a councelor a few times just to have him tell us what we had wasn't a marriage.
      Leave Too Soon to Tell
      I started moving out last week but now he will be homeless next friday because he can't find a job. He has the kids so worried about him that I will probably have to let him stay here for a couple weeks for them. My lease will only let him stay for 2 WEEKS, then he is out and on his own.
      Pets Working / Worked
      It didn't help the marriage but at least I know the cat loves me.
      Talking Not Working
      tried but he wouldn't listen.
    • Open Chronic Pain

      Treatments

      Cymbalta Somewhat Helpful
      It helps the anxiety caused by the endless pain.
      Heat Working / Worked
      Sometimes helps the muscle pain associated with pleurosy.
      Hydrocodone Working / Worked
      Tried but the dosagewasn't igh enough to control the pain. Also had ups and downs from the 4 hour doasage.
      Methadone Not Working
      I tried it for two weeks when I did not have insurance. Caused back spasms, nausea and headaches. Then when I quit taking it I went through horrible withdralws for a week ending up in a hospital.
      Morphine Somewhat Helpful
      Was only helpful while in the hospital and recieving it through an epidural or IV.
      Nerve Blocks Working / Worked
      I get an epidural nerve block about every 6 weeks for two discs that are gone. It works better than anything else for thatpain.
      Neurontin Somewhat Helpful
      Worked a little on the nerve pain but that is only the beginning of my pain problems.
      Oxycodone Working / Worked
      It worked but due to stomach problems we changed to fentinyl patches instead.
      TENS Working / Worked
    • Open Fibromyalgia

      Treatments

      Cyclobenzaprine Not Working
      Cymbalta Somewhat Helpful
      Duragesic Patch Working / Worked
      Guaifenesin Somewhat Helpful
      Neurontin Somewhat Helpful
      TENS Somewhat Helpful
      Ultram Not Working
      Vitamin B12 Somewhat Helpful
      Zanaflex Somewhat Helpful
    • Open Medicaid

      please see profile

    • Open Medicare

      please see profile

    • Open Migraine Headaches

      Severe dibilitating migraines since 7 years old. Hereditary.

      Treatments

      Amerge Somewhat Helpful
      Lessens the severity but only temperary.
      Aspirin Not Working
      did nothing
      Avoid Certain Foods / Chemicals Not Working
      didn't help
      Axert Somewhat Helpful
      Lessens the severity but only temperary.
      Caffeine Somewhat Helpful
      helps but only in combination with several other drugs
      Excedrin Not Working
      did nothing
      Fioricet Somewhat Helpful
      Lessens the severity but only temperary.
      Fiorinol Somewhat Helpful
      Lessens the severity but only temperary.
      Imitrex Somewhat Helpful
      Lessens the severity but only temperary.
      Inderal Not Working
      made me sleepy all the time
      Magnesium Not Working
      did nothing
      Maxalt Somewhat Helpful
      Lessens the severity but only temperary.
      Midrin Somewhat Helpful
      Lessens the severity but only temperary.
      Naproxen Not Working
      did nothing
      Relpax Somewhat Helpful
      Lessens the severity but only temperary.
      Topamax Not Working
      Made me sleepy all the time.
      Tylenol Not Working
      did nothing.
      Zomig Somewhat Helpful
      Lessens the severity but only temperary.
    • Open Pneumothorax

      11 spontaneous pneumo's, 4 chemical pleurodisis and 2 surgeries (1 on each side) now chronic pleurosy.

      Treatments

      Surgery Working / Worked
      1 on each side but left me with chronic pleurosy. Every sneeze cough or strain triggers more.
    • Open Physical & Emotional Abuse

      No physical but lots of emotional abuse.

      Treatments

      Leave Not Working
      I moved out with the kids and 2 weeks later he just moved in. He won't leave and because there is no physical danger the police can't help.
      Talking Somewhat Helpful
      makes me feel a little better.
    • Open Insomnia

      Treatments

      Ambien Not Working
      Just made me sleepy but didn't put me to sleep.
      Lavender Not Working
      hate the smell
      Lunesta Not Working
      Made me sleepy but didn't make me sleep
      Meditation Not Working
      Relaxed me a little but no sleep
      Music Somewhat Helpful
      Doesn't make me sleep but lessens the boredom
      Reading Not Working
      didn't work
      Sonata Working / Worked
      made me sleepy but didn't put me to sleep
      Trazodone Working / Worked
      worked for a few years but stopped taking when the max dose was no longer enough
      Valerian Not Working
      did nothing
    • Open Raynaud's Disease

      Discovered this was the cause of my intolerance to cold after years of being told it was all in my head. It is secondary to several other diseases

    • Open Rheumatoid Arthritis

      Have RA secondary to CVID there for can't take steriods. Thank ZGod it's mild.

      Treatments

      Celebrex Not Working
      Tylenol Not Working
    • Open Adoption
      Type: Open Adoption

      Was adopted by friends of my mothers when I was 10. Wow, that was confusing.

      Treatments

      Psychotherapy Somewhat Helpful
      was helpful during my teen years
      Forgiveness Working / Worked
      Forgiving my birth mother was the only way to move on.
    • Open Panic Attacks

      Severe stress and endless medical problems

      Treatments

      BuSpar Working / Worked
      only works in combination with cymbalta & paxil
      Klonopin Somewhat Helpful
      Doctors decided was too addictive
      Meditation Not Working
      just don't have any alone time to do it
      Patience Not Working
      if only I had the patience of a saint
      Paxil Working / Worked
      Only works in combination withcymbalta & buspar
      Positive Thinking Somewhat Helpful
      I try to see the cup half full as often as I can
      Serzone Not Working
      Xanax Somewhat Helpful
      doctors said too addictive
      Cymbalta Working / Worked
      only works in combination with Paxil buspar
    • Open Pleurisy

      Thanks to 2 lung surgeries (1 on each side) I have chronic pleurisy most of the time

    • Open Osteoporosis

      Diagnosed at 29. Have multiple medical problems but not sure what caused the osteoperosis

      Treatments

      Fosamax Not Working
      couldn't tolerate
      Zometa Somewhat Helpful
    • Open GERD & Heartburn

      severe acid reflux resulting in berrett's esophagus.

      Treatments

      Aciphex Somewhat Helpful
      Antacids Somewhat Helpful
      used in combination with protonix 3 times a day
      Avoid Certain Foods / Chemicals Not Working
      Carafate Not Working
      Dietary Modification Not Working
      Nexium Not Working
      not strong enough
      Pepcid Not Working
      not strong enough
      Prevacid Not Working
      not strong enough
      Prilosec Not Working
      not strong enough
      Protonix Working / Worked
      works at 40mg, 3 times a day dose
      Raising Bed Position Not Working
      Reglan Somewhat Helpful
      helps with protonix
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