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  • About Me

    Image of dc6289

    dc6289

    Female, 40, Seeing Someone
    Cortland, NY, USA
    Member since April 17, 2008

    • About Me

      I've been recently diagnosed with retnia dystrophy. I am going blind.

      I've been recently diagnosed with retnia dystrophy. I am going blind.

  • Recent Activity

    November 15

    September 12

  • Journal

    • Journal Entry for January 14, 2009

      Mood January 14, 2009 9:20am

    • Out with my brother

      Mood October 6, 2008 11:46am

      I was at the mall with my brother and we were walking along, and I ran into a bench.  I said to my brother "why didn't you tell me the …

    • Update to grades

      Mood July 29, 2008 10:40am

      I finished my summer courses and got the following grades.....

       

      Auditing  A-

      Writing 2  C

       

      WooHoo almost there.

    • I met someone that inspired me

      Mood June 25, 2008 10:52am

      I met a person last friday that really inspired me.

       

      She is totally blind and has been most of her life.  Gets around way better then I …

    • Rehab

      Mood June 25, 2008 10:48am

      I am a little sad.  My rehab has ended yesterday.  He was a great teacher and I have learned alot.  He taught me how to do many things …

    Read Journal

  • Hugbook

    Give dc6289 a hug



    • Hug

      From OJewel April 27

      haven't heard from you lately. Hope you are ok. Are you?

    • Hug

      From OJewel September 29, 2008

      Thank-you for responding to me. I will seek out some of your authors. I learned how to type from Hadley School for the Blind. Its a free school, too.

    • Hug

      From OJewel August 29, 2008

      random hug time!

    • Hug

      From OJewel August 17, 2008

      Thanks for your post about the "flipper". I will definetly inquire!

    • I’m With You

      From puma4204 August 8, 2008

      I feel your hurt , and fear. My wife has said it is like the Beatles song Help.. the words " My independence seems to vannish in the haze".With the loss of sight, She will loose her job the commute to work, her driving . No run to the store, We plann on taking it as is and still going on drives ," Rallies" (have motor scooter) We figure Life goes on. And it could be worse. I hope to have the ability to deal with this . I know it will be tough ... but we have no choice but to go on. I hope you also shall over come this .

    Read Hugbook

  • Goals

    Goal Completed on Jan 14, 09
  • Support Groups

    • Close Blindness & Visual Impairment
      Type: Legally Blind

      I have been diagnosed with retinitis pigmentosa a few months ago and am loosing my vision. I am legally blind with corrective vision at 20/440

      Treatments

      Humex Working / Worked
      There is no treatment or cure
    • Close Lupus

      I personally do not have lupus but my boyfriend does. He was diagnosed 18 years ago.

      Treatments

      Methotrexate Not Working
      This medication made him worse and so sick to his stomache he wasn't able to do anything.
      Plaquenil Somewhat Helpful
      Keeps the rashes down. Prolly would work better if he took it on a regular baises
      Prednisone Working / Worked
      Works well on keeping the pain down. Again would work better if he took it on a regular baises.
  • Groups

  • Friends


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