STILL KICKIN....
August 8, 2009 10:52am
HI ALL... BEEN VERY BUSY HERE... MY GRANDFATHER HAS HAD HAD SEVERAL CVAS[STROKES..]WE FOUND OUT ON JULY 9TH ...EVIDENTLY THEY WERE GOING ON A …
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Helyn
11:56am, February 21, 2009
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About Me
Helyn
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About Me
I am a nanny.I have severe sle lupus w/ multiple organ failure.They tell me its end stage, what do they know. I am the mother of 3 children.2 boys 25, and 23.a 16 yr old girl.married for 12 yrs.to a wonderful kind man, , grandmother of 2, 8 yr old boy, newborn girl.I also have cushings, addisons , 2pituitary tumors, a pituatary leason, hasimotos, liver failure, heart failure, atrophied rt kidney, vasculitis, and rsd[reflex sympathic distrophy]rt hand. so far thats all thats wrong with me.p.s forgot also have hemaphilia [factor 8 defiency] i know girls arent supposed get it but i am here as proof they can. when i was diagnosed in 68 i was only the 6th girl known in the u.s. my dad[birth father]and son also have it.
I am a nanny.I have severe sle lupus w/ multiple organ failure.They tell me its end stage, what do they know. I am the mother of 3 children.2 boys 25, and 23.a 16 yr old girl.married for 12 yrs.to a wonderful kind man, , grandmother of 2, 8 yr old boy, newborn girl.I also have cushings, addisons , 2pituitary tumors, a pituatary leason, hasimotos, liver failure, heart failure, atrophied rt kidney, vasculitis, and rsd[reflex sympathic distrophy]rt hand. so far thats all thats wrong with me.p.s forgot
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Interests
I love to engrave in granite.I used to have my own business doing pet grave markers, address markers, even a few human.I even engraved my own but that seems to be at an end, . the dust they tell me can cause lupus and flares.so now I will only do it for friends and family. God, I miss making a difference.I used to love to go dancing with my friends, but that to has ended.the body wont cooperate. still havent found anything to replace my former life. but, I am sure one day I will.I do love to garden, except now a days my gardens look like a mini jungle. love dogs and cats have 6 dogs 1 cat.
I love to engrave in granite.I used to have my own business doing pet grave markers, address markers,
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Recent Activity
Recently:
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5 hugs received, 4 hugs given, 1 journal comment
Sunday
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Helyn gave reddutchgirl a hug 12:22pm
hi...had it fri...i am out of my mind with the pain...call whenever youd like...i cant find my little…
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Helyn gave BeautifulDreamer a hug 12:57am
THANKS FOR THE FLOWERS....I JUST THOUGHT I WOULD POP IN AND SA HI...SURGERY WENT WELL... PAIN IS JUST…
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Helyn commented on reddutchgirl’s journal entry Journal Entry for November 21, 2009 12:51am
HI THERE DARLIN....SO GLAD TO HEAR YOURE DOWN TO FORTY..LOVE YOU ME…
Thursday
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Helyn gave reddutchgirl a chocolate 9:14am
GOOD MORNING DARLIN....I HOPE YOU ARE FEELING BETTER...I AM THINKIN OF YOU... LOVE AND HUGS HELYN…
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Helyn gave BeautifulDreamer a hug 9:07am
HI CHERYL....I AM STILL ABLE TO TYPE...THEY CHANGED MY SURGERY TO THE 20TH....SO I GOT A 24 HOUR REPRIEVE...LOL..…
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Journal
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This entry is private
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JUST WANT TO CLEAR UP SOME THINGS...
June 10, 2009 9:16pm
SORRY TO CONFUSE SOME OF YOU AND LEAVE YOU WITH MORE QUESTIONS THAN ANSWERS... I WILL ANSWER THEM FOR YOU NOW...
WHAT …
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IT HAS BEEN A WHILE...
June 10, 2009 9:41am
WELL IT HAS BEEN AWHILE SINCE I HAVE JOURNALED...ALOT HAS HAPPENED SINCE LAST TIME... I GUESS I WILL START WITH HOW I FEEL...I FEEL ALMOST …
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I HAVE TURNED IT OVER TO GOD!!!I I WILL NOT TAKE IT BACK...
October 4, 2008 10:53am
I HAVE MADE A DECISION..... I AM TURNING THIS ALL OVER TO GOD... I AM PLACING EVERYTHING IN HIS HANDS....I AM NOT GOING TO POISON MY BODY ANY …
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Hugbook
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Hug
HEY YOU!!! I HAVEN'T CALLED BECAUSE I CAN'T REMEMBER WHEN YOU ARE HAVING SURGERY. HECK I CAN'T REMEMBER MY OWN APPT'S. LOL CAN'T STAND THE STEROIDS, EVEN THE REDUCTION. AT LEAST I'M NOT AS BAD AS "PUMP # 23."
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I’m With You
Well, I guess we said it all. LOL But I'll send the Bandaid for your boo-boo any way. I hope you get a hold of the doctor! Get better! :)Cheryl
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Flower
Recovery flowers for you! :) Cheryl
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Hug
Well then, I will be praying on the 20th too! I hope all is well with you otherwise. I am fine, just wishing more work would come in for Brian. Things came to a screeching halt after a huge job got postponed. I didn't have time to prepare ahead. sigh. Oh well, just like every other winter with this business, our faith carries us through. I just wish it weren't always at Christmas time. Well, take care and I will be keeping you in mind tomorrow as well and praying for a successful surgery with speedy healing! Love Cheryl
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Prayer
You've been on my mind all day! I prayed for you this morning for everything to go well. I know you can't write back, but just know I am praying for you! Take care!!! Love ya!! Love, Cheryl
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Photos
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Goals
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Support Groups
Close Lupus
diagnosed march 07 with sever sle lupus with multiple organ failure.3 pituatary tumors, constrictive pericarditis.pericardectomy in july 07.in liver failure kidney failure.adrenal insuffient. hasimotos,rsd,generally i seem to be a wreck.
Treatments
- Plaquenil Working / Worked
- helping no side effects
