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  • About Me

    Image of tomad

    tomad

    Male, 58
    Bronx, NY, USA
    Member since April 14, 2008

    • About Me

      I was found positive for PKD 30 years ago and only now have symptoms. My bp went up and stayed there. I am on a reduced salt diet and have lost about 5 lbs. I have been a long distance runner and still get regular exercise. I am a lay Catholic Chaplain and am coordinator of a program to provide spiritual support to elderly homebound. I like a good cup of espresso, good exercise, and doing a good job. I like to help others as they show a need and try not to take life to seriously.

      I was found positive for PKD 30 years ago and only now have symptoms. My bp went up and stayed there. I am on a reduced salt diet and have lost about 5 lbs. I have been a long distance runner and still get regular exercise. I am a lay Catholic Chaplain and am coordinator of a program to provide spiritual support to elderly homebound. I like a good cup of espresso, good exercise, and doing a good job. I like to help others as they show a need and try not to take life to seriously.

  • Recent Activity

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  • Journal

    • APKD 'light'

      Mood October 18, 2008 10:01pm

      I recenty had an ultrasound on my kidneys and liver and an echo-cardiogram.  The ultrasound detected one small cyst on my right kidney and two 1 …

    • PKD: comes on slowly then with a vengence

      Mood August 11, 2008 8:35pm

      I may have said this before but here goes again.  I have been PKD+ for many years.  An IVP gave the first (+) results.  In my early …

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  • Hugbook

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    • High Five

      From beachlovingmom September 18, 2008

      Thank you for your message - I am so glad to have found this board. :)

    • Flower

      From MARGEBALTAR August 6, 2008

      FLOWERS COMING YOUR WAY. TODAY IS THE CELEBRATION OF MY NEW LIFE KIDNEY TRANSPLANT 9YRS AGO YAHOOOOOOOOOO.LUV TO YOU DEAR FOLLOWED BY WISDOM HOPE YOUR WELL. HELLO NY.

    • Hug

      From MARGEBALTAR April 14, 2008

      HELLO NY, I LIVED IN QUEENS/BROOKLYN MOST MY YOUNGER YRS.MY FAMILY STRONG PDK GENE FROM MOM. READ MY JOURNAL ALSO CHECK OUT PKDCURE.ORG I HAD BEEN ON SO MANY BP MEDS LOTS HIKING THRU OUT EUROPE VERY BUSY WITH SPORTS AND SKIING. STAY STRONG DON'T OVERLOAD KIDNEYS CAFFIENE HAHA I LOVE MY ESPRRESSO ALSO YOU BET YA.BEST OF LUCK MARGE FROM THE GREAT NORTHWEST. OTHER FAMILY IN WHITESTONE. TAKE CARE MY FRIEND. MARGE

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  • Goals

    Progress

    0 %

    Goal End Date is Feb 26, 10 95 more days.
  • Support Groups

    • Close Polycystic Kidney Disease (PKD)

      Diagnosed with ADPKD 1978. No symptoms until '08 with high bp. Ultrasound showed 2 cysts right and 4 cysyts left. MD recommended reduced sodium diet and exercise. My sister has it as does my mother and an aunt (her sister). My Mom is 80 and is close to beginning dialysis.

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