Journal

made a whole bunch of calls trying to coordinate my care. for pain management and neuro. the pca review nurse is trying to help me get more hours, primarily so we can get someone to come from further away to help out and afford it. trying to interview for a pca. hope to get a back up person soon then... 2-3 weeks max, thankfully.

scaling back further 2 projects, only doing bare minimum here and there.

since about 2.5 years ago, i have gained a total of a little over 40 lbs. i'm barely 5'5", now 164 lbs. most of the gain is from after hysto 3 months ago. yet my thyroid is fine. many women in my family get heavier after menopause, for whatever reason. oh well.

trying to stay grateful and patient. watching tv, which is much as i can do besides sleep recently. glad to have some yummy leftovers from last nite's gf delish cooking.

started to train the voice detection software and learn more about auditory microsoft  program. starting asap i hope to get enough poetry and material edited for 3 diff contests for early next year. that and knitting are my big plans for winter.

good times , simpsons reruns, yay

now i've another episode where first i was exhausted, then having a hard time with my muscles. then pain. from thursday starting with tired and today recovered enough to use the walker to the kitchen. mostly in 2 rooms now, the tvroom and bedroom. this is really annoying. we hope to see another neuro soon, and a pain management specialist whenever.

these past few days have been especially painful. samantha had to help me get up and put of bed for 1.5 days, due to severe neuro wonk on top of that. this started to happen, with some fatigue first, then mobility issues, then pain. plus i had a virus flare. this, nearly 2 days after travelling to visit with family for the first time in ages. they had all these chems after i asked them not to please.

friday i had no presence of mind to call the doc for a refill. now i might have to go to the er if the pain gets really bad.

this sux. i can't even miss a half day's dose. can't wait to see how they'll treat me, and how long they'll keep me at the hospital.

this is the 4th time these incidences have happened, since early april. i am sick of it and no neuro so far has a clue. some say com si, com sa. one thinks it might be ms but isn;t really confident to say for sure. my primary thinks it could be.

time for neuro #6, in 3 years. only 10 days longer to wait.