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  • About Me

    Image of tbrads

    tbrads

    Female, 37
    Sharon, PA, USA
    Member since April 13, 2008

    • About Me

      homemaker, military wife, mother of 5, Roman Catholic, flute/piccolo, currently working to complete music degree

      homemaker, military wife, mother of 5, Roman Catholic, flute/piccolo, currently working to complete music degree

  • Recent Activity

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  • Journal

    • Journal Entry for May 6, 2008

      Mood May 6, 2008 10:47am

      Really stiff again today - last night my hands and legs/feet from knees down just ached horribly.  Enough to bring me to tears.  Also lots …
    • lots of pain today . . .

      Mood May 5, 2008 10:13am

      It is even difficult to type today  . . . my hands are so stiff and hurt more than usual.  After only a minute or so of typing my right …

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  • Goals

    Progress

    0 %

    Current Weight (Lbs)
    178
  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Primary Progressive MS

      Treatments

      Neurontin Somewhat Helpful
      Definately have better movement with it - not so stiff
    • Close Epilepsy & Seizures

      5 year old son with probable Lennox Gastaut. Multiple seizure types and global developmental delay.

      Treatments

      Depakote Working / Worked
      Seems to help.
      Diastat Working / Worked
      Praise the Lord for Diastat - has stopped long/cluster seizures on many occasions!
      Dilantin Not Working
      HORRIBLE HORRIBLE HORRIBLE!!!! During use he lost all speech capabilities.
      Lamictal Not Working
      My son had an allergic reaction to this. The last week he was on it was horrible.
      Phenobarbital Not Working
      First med tried, did not seem to work, and seemed to cause delays.
      Topamax Not Working
      Did not help and made him eat everything (cardboard, etc.) also caused severe tremors.
      Tranxene Working / Worked
      Helping with prolonged seizures, but now has staring and drops.
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