reddutchgirl's Journal

I just got back from the long drive to Duke and while I'm very exhausted, I'm also a little elated.  My sister ended up driving with mom, but I'll get to that in a minute.  I get to start tapering the evil prednisone, yes!!!!  Doc says that I'm just one of those people that feel worse on prednisone and will be an easier patient for them to get off of it.  I knew it.  My muscle strength has actually improved, but I feel weaker.  We start 5mg and I call every 2 weeks and update; fingers crossed, in 60 days I will be prednisone free.  Hell yeah!!!!  I actually drank a Blue Moon Pale Ale in celebration.  It was a mistake later, but fun while I was drinking it. lol  I get Nexium added to the mix of pills, but I'm coming off of the one I want to get off of the most.  The Imuran will take 6-12 months.  I told the neuro that I would be in remission by then and I meant it.  I know that there could be setbacks and I'm prepared for that, but I think once this prednisone starts getting out of my system, I will be feeling a lot like the old me again.  Plus I believe in visualization and I have to believe and visualize.  Healing is still priority one in my book and will be for awhile longer.  I just feel so much better knowing that it is possible.   The last appt. was quite a bit of doom and gloom.  This one was so much more positive and there was no mention of thymectomy, woo hoo. 

I laughed an awful lot in the past couple of days.  My mom and sister are hilarious together.  I have many funny stories from this little escapade to get me thru some of the dark days and for that I am very appreciative.  They will probably shoot me, but I will tell ya'll some of them later.  I'm pretty tired from the drive there and back, over 10 hours in the car and 2 in the doc's office.  The screen is not too clear right now and my brain is tired.  I wouldn't do them justice right now.  They were too funny.  They wouldn't let me drive at all.  They were too scared so I just got chauffered around everywere.  Not too shabby, but I think I can make the next appt. alone.  It was fun, but I could have done it myself and I don't like the fact of them spending too much money and tiring themselves out. 

I'm going to lay down til Tris gets home as Matt is on afternoons all this week.  I'm alone getting the kid fed and to bed, better take a break before he gets home.  Hope all of you have a wonderful day and I'll try to get back on here tomorrow.  Love, Peace and Courage,  Kim