YoMags's Journal

Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that can cause loose unstable joints which dislocate easily, skin fragility (tears and bruises easily), and/or organ fragility (major organs, veins and arteries can spontaneously rupture).

EDS affects about 1 in every 5000 people; however it is grossly under- and/or mis-diagnosed: some 80% of people with EDS do not receive a proper diagnosis or treatment within their lifetime.

We (the EDNF) are working to change this statistic by raising awareness of this disorder within the medical community and in society at large. The Ehlers-Danlos National Foundation (EDNF) is a 501(c)(3) nonprofit organization.

Please check out my fundraising site to help the EDNF: http://firstgiving.com/yomags