YoMags's Journal

Ehlers-Danlos Syndrome (EDS) awareness is desperately needed. Spreading information about EDS has a direct affect on the quality of life for at least 50,000 known people in this country alone, and countless unknown.

I am using this site in the hopes that all of you can have a better understanding of my disability and how we with EDS are impacted every moment of our lives and can benefit from your help.

An EDS General Awareness and Patient Brochure is available for download here: http://www.ednf.org/dmdocuments/eds-brochure-high-res.pdf

Please use it and this Sports Poster flier: http://www.ednf.org/images/stories/EDNF_Kids_and_Teens/Sports_Poster.pdf to inform yourself, all of your doctors, your children’s schools. and your local gym and community centers about EDS and how it is diagnosed.

(For every facility, doctor, school nurse, school gym teacher, local gym, community center, etc. that you give these materials to, please post their location and contact information on www.ednf.org to inform EDSers about these newly EDS-aware resources in their area.)

Print out and distribute these brochures and fliers to whomever you meet. The only thing “rare” about my disorder is the amount of people who are properly diagnosed within their lifetime – awareness can help change this.

I deeply appreciate all of you helping me spread the word so that people who have needlessly suffered will finally have the recognition and assistance that they so desperately need. Please help make it a Happier EDS Awareness Month every month - EDS Awareness Month isn't just limited to May! (Forward this information to everyone you can.)

Best wishes and sincere gratitude, Mags