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  • About Me

    Image of YoMags

    YoMags

    Female, 103
    VA, USA
    Member since February 25, 2007

    • About Me

      Ehlers-Danlos Syndrome Awareness - help spread the word. Check out www.ednf.org the Ehlers-Danlos National Foundation for more information.

      Ehlers-Danlos Syndrome Awareness - help spread the word. Check out www.ednf.org the Ehlers-Danlos National Foundation for more information.

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • My Pit I've Been In Since August 2008

      Mood March 30, 2009 6:42am

      I apologize to those of you who have been wondering where I've been and had no other way to reach me. I am back online at yomags@comcast.net if …

    • October was my last entry?

      Mood October 2, 2008 4:08am

      I don't remember adding this "Get Healthier" goal in October 2008, but here is the Journal entry to prove it. I'm commenting on …

    • Journal Entry for May 7, 2007

      Mood May 7, 2007 3:02am

      Ehlers-Danlos Syndrome (EDS) awareness is desperately needed. Spreading information about EDS has a direct affect on the quality of life for at …

    • Journal Entry for February 25, 2007

      Mood February 25, 2007 10:16pm

      Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that can …

    Read Journal

  • Hugbook

    Give YoMags a hug



    • Hug

      From petal69 September 8, 2008

      Thanks for the friends add.......I like what you have to say about EDS....The old posts I mean!

    • Hug

      From Searching4nansw May 24, 2008

      Just sending love and hugs to all my dailystrength friends.

    • Hug

      From thea0630 May 13, 2008

    • Hug

      From kayzee September 28, 2007

      If you feel anything like me today, I hope this helps a little Kay x x

    • Hug

      From thea0630 September 13, 2007

      Hey there Mags It's me Thea. Have a great day!!!!

    Read Hugbook

  • Goals

  • Support Groups

    • Close Ehlers-Danlos Syndrome

      HEDS diagnosed at age 35 after lifelong problems.

      Treatments

      Physical Therapy Working / Worked
      Myofascial release and other hands-on treatment modalities, weekly.
      Osteopathy Working / Worked
      Monthly GENTLE adjustments from head to toe; every other month prolotherapy on particularly loose joints.
      Aqua Therapy Working / Worked
      Weekly or more deep water exercise using buoyancy belt. The more toned the muscles, the fewer and less severe the subluxations.
      Prolotherapy Working / Worked
      Knees are most painful to have done, but prolo has kept me from having surgery and I swear by it - absolutely!
    • Close Hypermobile Syndrome

      I have hypermobile Ehlers-Danlos Syndrome - diagnosed when I was 35 years old after a life long search for answers.

      Treatments

      Prolotherapy Working / Worked
      Same as above...
    • Open Chronic Pain

      I have chronic pain from hypermobile Ehlers-Danlos Syndrome in which all the joints in my body constantly sublux when I move...

      Treatments

      Chiropractic Adjustment Working / Worked
      MUST be performed GENTLY on people with EDS or the tendons/ligaments get further stretched out.
      Cymbalta Somewhat Helpful
      Prolotherapy Working / Worked
      Tighter joints = less pain from my hypermobile EDS.
    • Open Adoption

      I was adopted at birth - arrangements made privately while mother was waiting in the hospital for me to come. Don't know anything except mother's possible name.

  • Friends


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