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  • About Me

    Image of kadiestr

    kadiestr

    Female, 28
    Toledo, OH, USA
    Member since April 8, 2008

    • About Me

      I found out that I have Sjogren's syndrome when I became pregnant with our first child. When I was about 22 weeks prego, the doctors found that the baby has complete heart block. He now has a pacemaker. But as for me, all I have currently is a dry mouth. My eyes are good so far. I will probably start medication soon to slow the process down now, then to wait until my symptoms are bad.

      I found out that I have Sjogren's syndrome when I became pregnant with our first child. When I was about 22 weeks prego, the doctors found that the baby has complete heart block. He now has a pacemaker. But as for me, all I have currently is a dry mouth. My eyes are good so far. I will probably start medication soon to slow the process down now, then to wait until my symptoms are bad.

    • Interests

      video games, computers, card games, cats, knitting, crocheting, world of warcraft, camping, and atv-ing

      video games, computers, card games, cats, knitting, crocheting, world of warcraft, camping, and atv-ing

  • Recent Activity

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  • Journal

    • On the downslope!

      Mood June 12, 2008 7:23am

      C-section scheduled for June 18.  Im on the count down. I cant wait.  I have 3 more days I have to work and then Im done there.  I …

    • Scheduled C-Section!

      Mood May 17, 2008 11:26pm

      The baby is scheduled for C-section on June 18.  I'll be 36 weeks.  Doctor said that if the baby keeps steady the way he is, we'll …

    • Journal Entry for April 29, 2008

      Mood April 29, 2008 5:44am

      Good day today!  Monday's ultrasound went well.  The dr was pleased that the heart meds to raise his beats worked.  He dropped to …

    • Journal Entry for April 27, 2008

      Mood April 27, 2008 9:46am

      Last fridays ultrasound the dr said he didnt like the dopler readings he was getting from the baby.  So they gave me 2 shots of steroids (one …

    • Journal Entry for April 23, 2008

      Mood April 23, 2008 7:32am

      Last fridays' ultrasound was good.  Quick and easy.  My ultrasound tech said that she is amazed over the development of my baby with …

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  • Goals

  • Support Groups

    • Close Sjogren's Syndrome

      I have Sjogren's syndrome. we found this out when I was pregnant, my baby had complete heart block. He is now 4 months old with a pacer and doing well! I am relatively symptom free. The rhuemy said I have a dryer mouth than most, will probably start medicine soon while I'm still healthy.

    • Close Congenital Heart Disease
      Type: Other

      I am 25 weeks pregnant and found out about 2 weeks ago that my baby has complete a/v block of his heart. (congenital heart block) which means that each side beats at its own pace. This was caused my by lupus disorder which i've never even knew about until we did blood work to find it because of the baby's heart.

      Treatments

      Prayer Working / Worked
      my baby is still alive and fighting!
      Prednisone Working / Worked
      Still working on my medrol dose pack then im on dexamethasone. The pack has been giving me heartburn, but on the plus side, the prednisone will help build lungs incase he has to be delivered early.
    • Open Parenting Newborns & Infants (0-1)

      I have a 6 week old baby boy, Lucas, with a pacemaker. I am a new mother and need some support and always have questions!

  • Groups

  • Friends


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