Journal

I tried to post this on a sight, but it wouldn't go through

Hi Whereismy..

First of all I would like to say I enjoy your user name. I myself would like to know where my car keys are most of the time, where papers go because I just had them in my hand, where my calendar is because I forget everything, where did I set my bills to pay, why are my cats bothering me-oops they need food or water, others telling me "I just told you that less than ten minutes ago" when sometimes <30 seconds ago I cannot remember. Five years ago my daughter gave me a key chains saying {I had to go get it!} “I thought of something, but I forgot”.   At times, I have asked myself when the last time I ate. I have recently argued with my son on what year he was born-I was wrong, and I could not remember what year I graduated from high school-and could not figure the math out without getting a calculator.  These are some of the issues that just came to the top of my mind. There are several more issues with cognitive skills that are a several times a day occurrences.  

 I two had high hopes and dreams of things I wanted in life. I was on my way to obtain these simple materialistic items that life has to offer.   I was struggling medically to function, but I was on my way.  I was on my way saving for my retirement and was living comfortably. Since December my savings is now what I am living on. I had to cash everything in because I lost my job. COBRA health insurance is what I am paying. I hear $420 a month isn’t to bad, yet with no income coming in it seems high. I would like to have my life back as well!

I keep researching and learning as much as I can, but I guess it is time for me to find a different doctor.  I am just so tired like so many others. It takes hope, courage, and a good support team to be able to push forward with medical discovery.  Be grateful for your husband and parents and this site.  I have learned a lot from this site. I enjoy being able to post on things that may hit home for me. I want to say THANKS to my friends and other blockers on the site because you are my support team. My family nor my friends understand what it’s like not to be able to plan ahead nor what I am actually going through. I feel alone.

I will send a link to watch a free webinar; I found it very informational myself. It is about 1 ½ hours long and I hope you find some insite.

http://now.eloqua.com/e/es.aspx?s=949&e=478f50b2716a4a7ebcaa652375d1cbfc&elq=4A710CA43AFB4C009F7492FFD7E0DE3D

I have done a lot of research to give to my doctor and I have suggestions. My doctors set me up to see several different specialists for different kinds of test, always to come back and say I am OK.  I am not and I want to be.

I flew out of state to doctor at the Fibromylagia and Fatigue Center (FCC). I think what they have to say and offer I really like. I was starting to feel better; however, things are not free and they're expensive.  You pay for things up front and then you turn it into your insurance. My insurance is denying coverage.  This is a battle right now for me. 

I too have had doctors at the FCC Center tell me that my Immune globulins are down across the board, they put me on Bio Identical Thyroid Therapy *{Dr Orange from DS has a post on Bio Identical Hormone Replacement-worth reading]*,  they put me on cortisol, and a Bio Identical sinusitis nasal spray( which is wonderful).  These are the prescription drugs. There are several supplemental things to take as well.  I started to feel good, but I cannot afford to pay for it all myself since my insurance will not help.  If I lived locally by a FCC center, I may still endure the cost, but to fly out of state and get treatment is expensive.   At home here I doctor at the Mayo Clinic and they tell me that my immune globulins are down in one subclass and not all of them across the board.  What is one to do?

Like you, as a kid I was always sick.  I got strep-throat all the time and would run very high fevers to the point of hallucination.  I out grew this but now I seem to have chronic sinus infections, daily flu like symptoms, bronchitis on a continual basis, I get sore throats and swollen glands frequently, I tend to get cold sores if I don’t take my vitamins in lysine {I else get cols sores in my nose quite frequent}. I am so tired always time.  It got to the point that I wanted to fall asleep anywhere. My doctor put me on Provigil which is to help you stay awake.  This helped for a while, but then I was back to wanting to fall asleep.  My doctor upped my prescription for Provigil to two pills a day. This is helpful for short Time.  Now I am taking the two pills a day, (along with many others), and I am still so tired. I sleep between 10-12 a day; I told my doctor again that I am concerned about my we wake of the day because it’s getting less than less.   

 After having my children, actually during pregnancy, I found myself being more tired than what I was used to.  I was still able to maintain a job, but this was all I could do. As the years went on, I told my doctor that my waking hours of day were getting shorter, but he didn't pay much attention-he told me it was the stress of being a single parent.

In 2000 I hurt my neck, and medically I have been going downhill since. I was told that I had Fibromylagia and have tried to deal with that for the last eight years.  During this time, I was working with longevity of almost seven years. {I was fired for working on my lunch which was something I did on a continual basis- nothing new}.  Since December I have not worked. Before December I was losing ground with my cognitive functioning as well as many other struggles. This last year I have done several medical testing at the Mayo Clinic with them to tell me everything is OK.  I knew I was not, and I had to do something more; this is when I sought out the Fibromylagia and Chronic Fatigue Center.

 Because I cannot afford to keep going to the center, I feel like I am back at square one minus a few steps.  I don't feel good.  I wished I lived closer to a FCC center and insurance covered it. Don't we all wish for a lot of things in life?  I keep praying and asking God what direction I need to go now. God gives me a burst of energy now on than to go back to the doctors to make suggestions for a different angle or something maybe more to check for. My doctor is an intelligent man; however, he is not helping me no matter how many specialists he sends me too. 

 I am tired of fighting with doctors. I am tired of not knowing from one day to the next how I'm going to feel. I cannot plan ahead. My son is in the Army Reserves and had a family picnic yesterday. I made it, but I was late. They we're done with their formations and already at the park. My sister had a bridal shower that I did make it to, late, and stayed for about one hour because I wasn't feeling well. My daughter had a birthday dinner at Applebee’s, but I wasn't feeling well and did not make it.  I cannot plan ahead! When I was working, I was a good employee, but could not join in many functions outside of work because I had to go home and rest.  

I hope my story is support for you to learn.  Learn of others experiences. Learn for your journey to recovery. Learn that you are not alone. Feel free to e-mail me anytime.

Kimberly

IM down with these two classes. 

I started another two classes and I am the downside of them. 

IM down with these two classes. 

I started another two classes and I am the downside of them.