Journal Entry for April 4, 2008
April 4, 2008 1:38pm
My 9 month old daughter was recently diagnosis with neurofibromatosis and congenital pseudoarthrosis. We are really scared right now because we …
wagler 
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About Me
wagler
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About Me
33 years old, married, 3 children, my daughter has nf1 and psuedoarthrosis of the right tibia
33 years old, married, 3 children, my daughter has nf1 and psuedoarthrosis of the right tibia
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update journal,hugsssssssssssssssssssssssssssssssssssss and lovessssssssssssssssssssssssssssssssssssssssssssssssss
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See I have no forgot you, I have not got your e-mail address on my computer at home!! I know I have it somewhere but I think the other half has bloody moved my newly printed out list somewhere!!! Huggles my dear my e-mail at home is wendy_c_31@yahoo.co.uk. Give your tribe a hug from me. xx
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Just thought I would give you a BIG HUG. xx
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im also with you i hope everything works out!
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Close Neurofibromatosis
MY 9 MONTH OLD DAUGHTER WAS RECENTLY DIAGNOSED WITH CONGENITAL PSUEDOARTHROSIS AND NF1
