Lupus really giving me issues...
It's pretty much winter here already. High today is 38F. I've been in a horrible Lupus Flare since Saturday and I'm just feeling better …
I could hide the bipolar disorder but not the Lupus too. I've been sick with Lupus 7 years and not worked for over four yrars. I have 1 daughter, divorced, and 1 grandson. Before Lupus I was an independent successful professional single woman, working 50-60 hrs/week. I suffer from severe depression and anxiety and I have developed social anxiety and tend to seclude myself from people. I don't like who I am now, I'm a shell of the person I once was. I'm working on trying to develop a life without the structure of the professional business world. Starting over to make a life for myself!
I could hide the bipolar disorder but not the Lupus too. I've been sick with Lupus 7 years and not worked for over four yrars. I have 1 daughter, divorced, and 1 grandson. Before Lupus I was an independent successful professional single woman, working 50-60 hrs/week. I suffer from severe depression and anxiety and I have developed social anxiety and tend to seclude myself from people. I don't like who I am now, I'm a shell of the person I once was. I'm working on trying to develop a life without
I have a degree in decorating...I love nothing more than redecorating for a friend. Love to scrapbook, garden, read, philanthropic projects and oh yes...and cook with a friend! However the diseases have taken my interests away. MOSTLY THOUGH, I treasure the time with my daughter, Stacia (she's 28) and grandson, Tristen (now 3 and hoping the 3's will be easier than the 2's were LOL)! PICS BELOW...
I have a degree in decorating...I love nothing more than redecorating for a friend. Love to scrapbook,
It's pretty much winter here already. High today is 38F. I've been in a horrible Lupus Flare since Saturday and I'm just feeling better …
I am soooo angry! I made a decision that I thought would cost me $35 but ended up costing me $315!!!!
Last Friday, I had $5 in my account. I would not …
I'm gone for a while and everything changes. MOST of it I can figure out, however, I just went in to update my goals and holy shit!!!LOL, this …
hey! well glad you spend time with your granson. sounds like you had fun. me iam ok, i went to appointment, came home and ate a piece of pie ,and now iam going to wash a load of clothes, and clean,
hello there! how was your day?
I'm a bit (understatement) of a wreck today; I slept in , as I was up too late last nite, so I didn't get to taking my dystonia med. on time, & am now having dystonia, along w/cold symptoms. Last nite's meeting was fairly unproductive; we arrived a little late, & the chairperson must've shared at least 3 times (it must've been his first time chairing a meeting; it's not really in the protocol to share if you chair). I really need a CODA sponsor, as I'm definitely very codependent, & don't know how to take care of myself! My wonderful therapist is helping me with that, but we only get to talk for about 40 minutes/week, and we aren't working the Codependents' Anonymous (CODA) 12 Steps, et al.
How are YOU doing? How is your Lupus? Have you been having flares? Does medication help?
I hope to hear from you soon! Loving you, Alexis
i too have to take those midday naps cause of fatigue and meds... so it is hard to sleep the night thru... plus i think that is part of our bp coming out to keep us from sleeping properly... don't you?... i yesterday exhausted myself mentally and physically with my daughter... i went with her to get supplies for her shop... and boy was that a challenge for me... but i have been battleing the breakdown time... and the depression of crying and shit... that you know that comes along with that... so i thought i would fight even more and go with her... she walks fast... and i can't anymore... had to walk with my cane... and i havent' got the hang of how to use the damn thing in the first place to help me to walk better... she is so quick.... to where i used to keep up with her... i told her she was going to have to slow down... i was so exhausted... when i got home... straight to be i went... and slept until 8 00 and thought that it was morning... was sure of it... and hubby had to tell me many times it was evening... dang ... so confused... and then i slept all night long too... so strange for me... but i just slept... then i woke confused again... but now i know that it is morning... i am sorry that you are having a hard time sleeping... and don't feel so good... i shall say prayers for you to feel better and get some rest... much love and hugzzzz.... karen :) and i hope that today is better for you my friend... :)
Thanks for the encouragement on my journal...moving in with my mom is really a big step for me(backwards or forwards,I haven't decided)..but all things are well today.Many hugs
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I tend to seclude myself, letting everyone think it is the Lupus, ashamed of being bipolar. I kept the BP disorder a secret since I was diagnosed at 31. But now the physical pain of the Lupus along with the mental demons is many days unbearable. I keep in touch w/my therapist and take my meds. However, some days they don't seem to work at all. There's a lack of joy along with the absence of energy and creativity. The constant pain has left me a shell of the person I once was.
I've been dealing with Lupus for 6 years now. It's been very dibilitating. I had to quit working over 3 years ago because my flares became so frequent and the pain and fatigue are extreme. As much as I want to be and as hard as i try...I'm not happy. I want to be happy again. I want to WANT to see people and socialize! I WANT to LIVE more of my life.