Journal Entry for November 24, 2008
November 24, 2008 9:45pm
Progress
45 %
jrmom
10:48pm, December 9, 2008
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About Me
jrmom
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About Me
I am a mother, daughter, grandmother, sister and registered nurse, who is presently a primary caregiver to her Mom who has End Stage Lung Disease, Breast Cancer, and Dementia, and who just lost her Dad after taking care of him with a long illness with Lung Disease and Kidney Failure, coping still with the loss of him and a estrangement from my only son is somewhat depressing and Mom's condition keeps me pretty much homebound and not much time to myself. I also am disabled with Systemic Lupus, degeneraive joint disease, spinal stenosis, and rheumatoid arthritis.
I am a mother, daughter, grandmother, sister and registered nurse, who is presently a primary caregiver to her Mom who has End Stage Lung Disease, Breast Cancer, and Dementia, and who just lost her Dad after taking care of him with a long illness with Lung Disease and Kidney Failure, coping still with the loss of him and a estrangement from my only son is somewhat depressing and Mom's condition keeps me pretty much homebound and not much time to myself. I also am disabled with Systemic Lupus, degeneraive
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Interests
Animals, health, walking, estate sales, crafts, online surfing, movies, enjoy time together with family
Animals, health, walking, estate sales, crafts, online surfing, movies, enjoy time together with family
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Recent Activity
Recently:
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1 hug received
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Journal
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SENT ANOTHER BOX FOR GRANDDAUGHTER
October 6, 2008 3:52pm
I sent another box to my 10 month old granddaughter last week with a couple matching outfits, a collection of baby nursery rhyme books, a stuffed …
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Things are not memories
September 30, 2008 10:06pm
I was able to let go of material things and donated items, like furniture, clothes, Knic knacks that I thought I would never be able to part with the …
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Hugbook
Hug
I still think of you often and hope and pray that wherever you are you are well. Happy Thanksgiving. barb
Hug
SHARE A HUG TODAY!!! Here's a little HUG for you To make you smile when feel blue To make you happy if you're sad To let you know .. life ain't so bad Now I've given a hug to you, Somehow, I feel better too ! Hugs are better when you share, So pass one on and show you care ! Judanna
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Hug
Just stopping in to say hi and let you know I am thinking about you. I hope and pray you and your family are well. Miss you around here. Love and hugs, barb
Hug
Happy Easter... May God send his blessings to you. Take care and keep in touch, Paula. Lots of Love, Judy
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Hug
I have been thinking about you a lot and hope you are doing okay. Miss you around here. Love and hugs, barb
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Photos
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Goals
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Support Groups
Close Autism / Autism Spectrum
I am seeking advice for my sister who is raising her twin 3 year old grandsons who are being evaluated this year for autism by a pediatric psych and a neurologist. I am seeking advice and support for her as she is very stressed and does not where to turn.
Treatments
- Behavior Management Working / Worked
- unsure
- Brushing Therapy Working / Worked
- The twins fight this and it is very hard to do for very long.
- Clonidine Somewhat Helpful
- Hyperactivity is better, but have noticed moodiness and increased hostility.
- Dexedrine Somewhat Helpful
- Not sure yet for treatment of ODD
- Early Intervention Working / Worked
- Occupational Therapy Somewhat Helpful
- Unsure
- Play Therapy Working / Worked
- Ritalin Not Working
- Put on Ritalin morning and afternoon and Clonidine at bedtime for ODD and ADHD taken off, caused too many side effects- put on dexadrine and clonidine at night
- Tenex Not Working
- Just started 4-15-08 discontinued in may
Close Lupus
I am a 50 year old registered nurse who has Lupus, degenerative joint disease and rheumatoid arthritis. I have been diagnosed for 9 years.
Treatments
- Medrol Working / Worked
- Worked on severe pain
- Methotrexate Working / Worked
- Working to get my sed rate down.
- Plaquenil Working / Worked
- Keeping flares from being as frequent
- Prednisone Working / Worked
- ongoing but decreased dosage daily
Open Bereavement
Type: Loss of a ParentI took care of my father for the last 5 years at my home when he became ill with emphysema and I got Hospice the last two years till his death 10 months ago. It has been so hard because he was a big part of my life and we were so close. My Mom has dementia the past three years, so I became her replacement for him in his dying days like staying in the hospital trips with him, and the emergency visits, she just was unable to be there for him, because of her memory and mood changes.
Treatments
- Crying Working / Worked
- Keeping Busy Working / Worked
- Pets Working / Worked
- I dont know what I would have done without their love.
- Prayer Working / Worked
- Remembering Working / Worked
- Support from Friends & Family Working / Worked
- Support Groups Working / Worked
- Talking Working / Worked
- Time Working / Worked
Open Caregivers
Caring for my 83 year old Mom in my home with End Stage COPD, breast cancer and dementia
Open Grandparents Raising Children
My sister and her brother-in-law are raising their twin grandsons who have behavior and developmental problems. The last 3 years have been a nightmare for them.
Open Child Support & Custody
I have a mentally retarded neice who is pregnant with a little girl who is due in October. My sister and brother in law are raising her twin three year old boys and have had them since they were 7 months old when DCF took them from my neice because of neglect and abuse. She was living with a supposedly responsible 24 hr live in assistant provided by a mediacaid waiver agency, but the person was leaving my neice alone with the boys for hours and my neice was forgetting to care for the boys.
Open Dementia
My 83 year old Mom, who has dementia caused by vascular injury after a stroke and has gotten progressively worse the past three years. I am her principal caregiver and she is most times a sweetheart, but her periods of agitation and sundowner's syndrome are getting worse. It breaks my heart when she gets the lost look on her face and wants to go home, but she does not know where her home is most nights.
Open Oppositional Defiant Disorder (ODD)
My sister is raising her twin grandsons who just turned three years old and are diagnosed with ADHD/OCD/ODD. They have therapy at home and are on two different meds they just started, but does not show any improvement. The hatred that comes out of their little mouths and anger just stupifies me when I see it. I have never seen a little toddler with so much anger. They are starting Fiddlers pre-school this month to get them ready for Kindergarden and they will get therapy all day long.
Treatments
- Child Time-out Working / Worked
- Works sometimes
- Dexedrine Too Soon to Tell
- Dexedrine Too Soon to Tell
