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About Me
sulma
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About Me
my daughter Tais has Cystic fibrosis she is 7 years old and she is a very loving girl, she likes to play tennis and to be always active doing different things. She does so well when she is feeling beter and everyone loves her. I am not sure to who I'm writing but I could use all the imformation that I can get to make my child happier and healthy. Please write back to me. I don't have internet at my home but I'll be cheking my e-mail whenever possible.
my daughter Tais has Cystic fibrosis she is 7 years old and she is a very loving girl, she likes to play tennis and to be always active doing different things. She does so well when she is feeling beter and everyone loves her. I am not sure to who I'm writing but I could use all the imformation that I can get to make my child happier and healthy. Please write back to me. I don't have internet at my home but I'll be cheking my e-mail whenever possible.
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god bless you hang in there hope my late wifes book about cf can help in some way its online at books a millon amazon best wishes
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Support Groups
Close Cystic Fibrosis
We are seeing Dr. Michael McCarthy in Spokane Wa. When my daughter first got diagnosed with CF we were going to seattle with Dr.Huffman in the Childrens hospita. Since it was to far for us, we switch to Spokane for a much safer drive. There they have a great team all together in a friendly atmosphere and I like that.
Treatments
- TOBI Working / Worked
- This medicine is taken a month off and a month on, so when she is using the Tobi she does so well and her cough is about 80% gone. without it she does poorly.
- Flonase Working / Worked
- its working well
- Pancrelipase Working / Worked
- We were triying to get her digesting better and by chinging to this pills, Tais is doing much better.
- Miralax Working / Worked
- this medicine helps alot when ever Tais gets constipated. It works quick
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