I may have borreliosis or Lyme Disease. Here in the South, it's also called Master's disease or STARI. There are different strains of the bacteria, so it accounts for the different names. I have been sick for over 3 years now. My symptoms have varied and changed throughout the illness. I was never sick before this illness. I have not had a cold or flu in at least 10 years, and I never really went to the doctor before this. Here is a brief list of my symptoms, and I will add to it later: Fevers, rashes, anaphylactic shock, food allergies, fatigue, tremors, joint pain, muscle pain, loss of collagen, bladder problems, hypothyroidism, mineral deficiencies, muscle twitching, muscle cramps, systemic (system wide) fungal infection, mild thrush, sensitivity to cold, low body temperature, unexplained chills or sweats, adema (retaining water), pain around right ovary, irregular menstrual cycle, flashes of light in eyes, floaters in eyes, sensitivity to light and sound, blurry or snowy vision, pain behind eyes, shooting pains in my head, swollen painful arteries on the sides of my head, loss of tissue between skull and skin so that my skull has places that are sunken in, NUMBNESS/WEAKNESS ON RIGHT SIDE OF BODY INCLUDING MY EYE ESOPHAGUS AND CHEST, loss of muscle, breathlessness, heartbeat heard in right ear, ringing in left ear, white fingers, low thrombin/antithrombin complex, headaches, loose/weak tendons and ligaments (caused me to dislocate left shoulder again and makes my knees hyperextend slightly sometimes), heart palpitations, heart racing around 120 bpm for hours at a time, chest pains, numbness and tingling in various places, sensation of veins throbbing, broken blood vessels, petechiae (small red spots on skin), sudden unexplained weight gain, bottoms of feet hurt especially upon waking, mild hair loss on head, tendency to have inflammation like carpal tunnel, dizziness (not vertigo, but more of a fluttering dizzy feeling in the right front part of my brain), extreme neck pain, sciatica down left leg, depression, anxiety, mood swings, memory loss, "brain fog", lack of concentration, spells of disorienting confusion, and painful lumps in my abdomen, throat and thighs in the fatty layer. Docs think they are "angiolipomas."
I may have borreliosis or Lyme Disease. Here in the South, it's also called Master's disease or STARI. There are different strains of the bacteria, so it accounts for the different names. I have been sick for over 3 years now. My symptoms have varied and changed throughout the illness. I was never sick before this illness. I have not had a cold or flu in at least 10 years, and I never really went to the doctor before this. Here is a brief list of my symptoms, and I will add to it later: Fevers, rashes,
I work in Information Technology. I am married, but have no children yet. My interests are concerts, music, computers, playing pool, Halo 3, spirituality, researching everything online, health issues, natural health, paranormal, animal welfare, and all the weird NWO stuff. The positive thing that has come out of having a long-term mysterious illness? I do such extensive research in trying to get myself better that I've learned so much about the human body. I am able to help my friends and family and people online whenever doctors are not helping them. I love helping people get a diagnosis and love helping them to find the right treatments for their symptoms. I believe God is helping me to help people in this way. I have compassion for people with illnesses, especially undiagnosed ones. I know what it feels like to be terrified of what is going on in your body and not having anyone to listen. I know what it's like for doctors to tell you that it's all in your head and you just need antidepressants. They will tell you anything and do anything to continue getting your money. They treat symptoms rather than finding cures. I don't want anyone to go through what I have been through during this illness. That is why I do my research to learn as much as I can and help as many people as I can. For anyone who has Lyme disease, my heart goes out to you. This disease is a mental, physical and emotional nightmare that seems to be neverending. Please don't give up hope. With prayer, perseverance, and knowledge, we can get better.
I work in Information Technology. I am married, but have no children yet. My interests are concerts,
April 12, 2008 2:54pm
Well... I had to discontinue my Hyperbaric Oxygen Therapy. Aetna denied my claim! Prior to treatment, their website reported they would pay for this …
April 5, 2008 1:15pm
Well, I started hyperbaric oxygen therapy 3 days ago, and now have had three 1-hour treatments. Basically, they put you in a tube and put you …
HI,I help people too withLyme and CFS.Have you seen the movie ubder my skin?? about Lyme? Take care,CFS-Lyme,Fibro-Ed
Just wanted to let you know that I am thinking about you and wishing you a good tomorrow.
C
Thank you for taking the time to write. It is always frightening to share things like this. You never know if someone will be upset. Just knowing that someone understand helps a lot. (not that I am happy that anyone is suffering.) It just seems to make the days easier knowing that someone else is making it thru each day. I feel like making a greater effort to take things in stride. Take care Cat
Thanks so much for your kind words of encouragement.
I hope your holiday season was wonderful and that you are feeling better!
I've been sick for almost 2 years now. Every part of my body has experienced symptoms at one time or another. This has been the strangest nightmare one could ever imagine. Doctors still say Lyme disease doesn't exist in the state of Oklahoma, though I see cases all around me. For my symptoms, please read the rest of my profile.
I don't have Morgellons, but it is interesting to me since I have Lyme disease. Scientists suspect Morgellons is a tickborne illness, since most Morgellons sufferers also have Lyme disease. Since Lyme disease comes mostly from ticks, it's logical to assume Morgellons does as well. Scientists at Oklahoma State University are currently studying this disease and have confirmed IT IS NOT A HOAX.
My mom died 7 days after my wedding on 4-9-06. It was the day we would have left for our honeymoon. She had a brain aneurysm at age 58. She was my everything and I miss her terribly each day. I could write about her forever, but I'll keep it simple and short.
Sick for 2 years with an undiagnosed chronic illness that could be Lyme disease. I'm a mystery of medical science. ;)
Just got diagnosed and I'm a little worried. Don't really know what to expect yet...
There is a small chance I may have RA. My grandma also has it.
I am here because there is a chance I may have Lupus.
