Join Now
amandabrandt 
Currently i am looking for anyone who knows something about Wilson's Disease. I find myself upset when doctors give me the run around. When I take my son to the doctor; the first thing they say is he doesn't look like a child with Wilson's. What does a child with Wilson's look like?? Then they proceed to examine him. After all that the doc says well i'll run some test just to be sure. The office calls about 1 and a half weeks later only to tell me they are not so sure? I have had this happen to me several times!! I'm just looking for some answers or clues on what is going on! So if there is anyone that has been through this or could give me some advise, I would greatly appreciate it! Thanks.
