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  • About Me

    Image of RetiredNavy02

    RetiredNavy02

    Male, 45
    CT, USA
    Member since March 28, 2008

    • About Me

      I suffered my first DVT back in 1992. While hospitalized I was also diagnosed with having a Pulmonary Embolism. The cause of the blood clot was never determined. In 1995, during a two-day mountain bike race up at Sugarloaf, Maine, I suffered another DVT. In 1996 I was diagnosed has having Factor V Leiden (Homozygous) and also found to have elevated Homocysteine levels. This led to a long road of self-education myself about my newly diagnosed medical condition. It also inspired me to help other patients through the creation of a Non-Profit Patient Advocacy Organization. I am Retired Military, having served 20 years in the U.S. Naval Submarine Force. I'm happily Married and have two young children (both who have FVL).

      I suffered my first DVT back in 1992. While hospitalized I was also diagnosed with having a Pulmonary Embolism. The cause of the blood clot was never determined. In 1995, during a two-day mountain bike race up at Sugarloaf, Maine, I suffered another DVT. In 1996 I was diagnosed has having Factor V Leiden (Homozygous) and also found to have elevated Homocysteine levels. This led to a long road of self-education myself about my newly diagnosed medical condition. It also inspired me to help other patients

    • Interests

      Helping Others, Mountain Biking, Fishing, Camping, photography, and spending time with my Family.

      Helping Others, Mountain Biking, Fishing, Camping, photography, and spending time with my Family.

  • Recent Activity

    Recently:

    • 1 discussion post

    Friday

    November 1

  • Journal

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  • Hugbook

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    • Thanks

      From hopenco4 September 26

      Thanks for the newsletter....Hope

    • Thumbs Up

      From mlou58 August 25

      Thank you so much for your support. The link you provided was extremely interesting and informative. I have been feverishly trying to educate myself about this issue since I left the hospital. Although the doctors I have dealt with have seemed very competent and well meaning, the lack of education regarding DVT and PE is astounding. I like many people hear had no idea what my recovery and future entailed until I found it for myself. Having an undergraduate degree in public health education makes me even more aware of what is lacking. I am very interested in the "Stop the Clot" organization and NATT. I will read through the sites to become better informed. Is there anyway I can become involved to help this cause? I live in Maryland and can see NIH and the Naval Hospital from my office window. I sure there are things going on there that need support. Again, thank you for spreading the word.

    • Hug

      From iceflake July 17

      a big thankyou ... very interesting

    • Superhero Status

      From wpbgirl July 15

      Thanks for the link on DVT.

    • Hug

      From pocohantas05 June 19

      thanks for the advice

    Read Hugbook

  • Goals

    Goal Completed on Apr 8, 08
  • Support Groups

    • Close Deep Vein Thrombosis (DVT)

      While serving on active duty in the U.S. Navy I suffered two unexplained DVTs (1992 and 1995). I also suffered a PE (1992). Was diagnosed with FVL (homozgyous) in 1996. Am currently involved as a national patient advocate for DVT Awareness

      Treatments

      Coumadin Working / Worked
    • Close Pulmonary Embolism

      Suffered DVT and PE in 1992, then another DVT in 1995. Was diagnosed with Factor V Leiden (Homozygous) and hyperhomocysteinemia in 1996.

      Treatments

      Coumadin Working / Worked
      Heparin Working / Worked
      Lovenox Working / Worked
  • Groups

  • Friends


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