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  • About Me

    Image of Seablanco1

    Seablanco1

    Female, 51
    Barnegat, NJ, USA
    Member since March 27, 2008

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  • Support Groups

    • Close Ehlers-Danlos Syndrome

      I've always had very flexible joints. In my 20's I started to have severe arthritis and poor wound healing. After a minor hand surgery in 2000, my fingers swelled and turned purple. My twin brother has had two aortic aneurysm repairs. I was referred to a Rheumatologist who said I had a collagen disorder--most likely EDS. I am in pain all of the time and I was also told by multiple docs that I have Fibromyalgia. My dad's joints are worn completly down and he said his docs have mentioned EDS.

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