Journal Entry for June 11, 2007
June 11, 2007 7:52pm
Holy Bejesus I haven't written in ages. I have been keeping up with reading your journals, well up to the past two weeks they have been …
Vron23
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About Me
Vron23
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About Me
I am a 21 year old female, who has some type of lupus like disease. I have had this anomoly for seven years now and I can't stand it. It interfers with work, school and relationships. I'm currently trying to figure out how to live my life better at this current point and hoping this site can help.
I am a 21 year old female, who has some type of lupus like disease. I have had this anomoly for seven years now and I can't stand it. It interfers with work, school and relationships. I'm currently trying to figure out how to live my life better at this current point and hoping this site can help.
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Interests
I like to watch TV, since I spend so much time on the couch or in bed. I like movies, especially since I joined Blockbuster online. I like reading and playing with my dog. I enojy excersising when I can, relaxing and cooking.
I like to watch TV, since I spend so much time on the couch or in bed. I like movies, especially since
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Recent Activity
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Journal
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Journal Entry for May 11, 2007
May 11, 2007 9:06pm
My word it has been a long time since I wrote anything. I'm sorry everyone I've missed you all. I've been reading what you've all sent I just …
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Journal Entry for April 23, 2007
April 23, 2007 10:19pm
I'm going to go back to work a bit, just to get out of the house. I'm happy about that. I was in a good mood this morning, but that went away in …
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Journal Entry for April 20, 2007
April 20, 2007 7:05pm
So the new doctor is well I think he's incompetant to say the least. He thinks I have fibromyalgia/chronic fatigue syndrom. I don't disagree that I …
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Journal Entry for April 7, 2007
April 7, 2007 12:38pm
I broke up with him. I feel like I've torn my own heart out and now I'm watching it sit on the corner of the floor taking it's last beats. I'm in …
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Hugbook
Prayer
hope your ok
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Prayer
Hope your ok !
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Prayer
miss you. hope your OK
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Hug
My best wishes...to a beautiful young lady. Hope all is well with you. Happy New Year...It the year of the something according to the chinese calendar
Hug
Wondering where you are and hoping that you are doing ok my young friend. Love and hugs, Sharon
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Photos
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Support Groups
Close Lupus
It started with mononucleosis, then progressed to firbomylgia/chronic fatigue syndrom.Although, Some doctors did not believe that and they said I have lupus, today my doctor says I have muscular/skelatal arthalgia or some such thing, whatever that is.I am in constant pain in all of my muscle and joints, suffer from depression and self injury and have very little if any support from family.Friends try to, but don't always understand.It's been 7 years and I just want to talk to people who get it.
Treatments
- Plaquenil Somewhat Helpful
- I've been on it for years it seems to help some.
- Prednisone Working / Worked
- It was a magical pill and it made me feel 100x's better, but it does have it's nasty little side affects. My current doctor refuses to let me go back on it.
- Massage Working / Worked
- I love my massage therapist, she helps when I flare. It doesn't solve everything, but it gets my muscles to feel better.
- Feldene Working / Worked
- Was helping with pain until recently.
- Doxycycline Working / Worked
- I've been on it for years and can't really tell if it works anymore.
- Effexor Working / Worked
- It helps tremendously with the depression issue that are related.
Close Fibromyalgia
It started with mononucleosis, then progressed to firbomylgia/chronic fatigue syndrom.Although, Some doctors did not believe that and they said I have lupus, today my doctor says I have muscular/skelatal arthalgia or some such thing, whatever that is.I am in constant pain in all of my muscle and joints, suffer from depression and self injury and have very little if any support from family.Friends try to, but don't always understand.It's been 7 years and I just want to talk to people who get it.
Treatments
- Acupuncture Not Working
- Didn't work for me, because they attached the needles to electrodes and I'm not okay with that.
- Aqua Therapy Working / Worked
- I know someone with a hot tub that has hydrajets, anytime I use it I feel great.
- Effexor Working / Worked
- It helps with the mood and depression issues that are related. Thank God for that pill.
- Elavil Working / Worked
- Always, helped me sleep, currently this doctor refuses to prescribe it.
- Massage Working / Worked
- I love my massage therapist, they are trained to help people with health issue and are a real life saver.
- Feldene Working / Worked
- Seems to help with pain, until recently.
- Plaquenil Working / Worked
- I guess it works.
- Doxycycline Working / Worked
- I'm pretty sure it works, I've been on it for so long I can't remember.
Open Self-Injury
I recently cut myself after being "clean" for about 3 years. I broke the trust of someone I love and need help to stop the thoughts of cutting from entering my mind
Open Sexual Abuse
I was sexually harrassed/abused by a co-worker and I let the abuse go on for about a year.I knew it was wrong and tried to make him stop, but no was nto in his vocabulary.I could get over this if it didn't make me have nightmares that made me remember being abused as a child by my uncle and a man that rented an aparement from my grandmother's house.Not to mention my first boyfriend raping me our first time, no wasn't in his vocab either.Now I realize some of my behavior comes from being abused.
Treatments
- Psychotherapy Working / Worked
- Thank God for my therapist.
