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fluter 
On March 28, 2009 I went to Washington DC to join the Walk for Epilepsy Research. I got a few people to sponsor me and I drove to Philly first to pick up a friend (from Ma) and then off we went to DC. It was about an 8 hour trip.
It was a drizzly day, overcast and muddy, but honestly, you couldn't dampen the spirits of those who attended. There where so many people there sharing a common cause. The feeling was that I wasn't alone and other's understood. There was an actor there, I'm sorry I forgot his name, Greg ??, he plays Matt on Heros, and he spoke for awhile about his son and about how we are all in this together, he was really inspirational! And then there was the NFL player who told us about the website www.talkaboutit.org and he was wonderful too. He had everyone yelling and waving! They all participated in the walk.
When the walk was over, there was a large tent with lots of information being given out, as well as apples, water and all sorts of zuchinni bread, pumpkin bread and tasty goodies! There where people talking about the legal issues of seizures, there where people with booths dealing with specific diseases of epilepsy and there was people with cameras documenting various stories that people would share.
It was a wonderful experience. We need more research to help us all out of this nightmare. If you get a chance to participate, I recommend it. There's strength in numbers and theres a bond that forms when you see everyone and know that you're not alone.
My daughter is participating in a trial for catamienal seizures. Hormone related seizures. She finished the trial and was given an 'open label' prescription for progesterone. In two months, she only had one seizure day. A definate improvement. I'm keeping my fingers crossed and praying for this month to be uneventful also.
Good luck to all of you, remember, we're not alone.
Love and prayers,
Linda (Fluter)
