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My seizures overwhelmed my life for several years, right at menopause. I didn't know if I was coming or going, if I wasn't seizing, I was having a hot flash or sweating or filled with anxiety. After the HRT, I started to feel better. Estrogen is supposed to make seizures worst, but somehow when the two where balanced I felt better. My seizures stopped. I got off meds. It's been 8 years and I'm seizure free, med free and off the HRT. Weight gain seems like no big deal.
Now, my daughter is having seizures. Started 6 years ago at 23 years old, with one Gran Mal, has escalated to complex partial seizures, sometimes 3 daily, but usually, 2xs a month. My heart is breaking. I don't know what life feels like in a relaxed state. Every time I relax, another seizure hits and I'm devastated. She's on a trial for hormon related seizures and I honestly believe that this is the cause, since it happened to me at menopause and giving birth was such a labored event (no pun implied) it seems a natural progression to believe that it's hormonal. She hasn't had a seizure when on the progesterone, but when she's off, she still had seizures. Also seems to have seizures with UTI's. Can't figure it out.
She's fortunate that the seizures haven't stopped her from continueing with life. They aren't frequent enough, so she gets the chance to bounce back and continue with work, school and her boyfriend. But they aren't stopping and they are increasing. I'm really scared. Of course talking to others who don't understand the nature of a seizure is pointless, they don't understand what it feels like to be so vulnerable and to have a post ictal phase that completely disorients you and makes you forget the simpliest of life's tasks, like names!
Still, there's a strenghth that comes each time we get over another hump, and a bond that forms between us that's unbreakable. The strength brings resolve to keep trying new things and the bond reinforces our love for each other, and makes us continue to hope for an answer.
We won't give up. Can't.
Linda
