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About Me
sunshine521
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About Me
I am married and a proud mother of 2 awesome kids and been fortunate enough to stay at home with them. Pretty up beat out going person that loves life and having fun. Trying to adjust to a life with MS as positive as I can and take one day at a time and try to dodge any curve balls life has to throw my way. Lucky to have a great support system with my family and friends but nice to talk to others that understand more of what I go through and of course hopefully help others along the way! You can never have too many friends or support :o)
I am married and a proud mother of 2 awesome kids and been fortunate enough to stay at home with them. Pretty up beat out going person that loves life and having fun. Trying to adjust to a life with MS as positive as I can and take one day at a time and try to dodge any curve balls life has to throw my way. Lucky to have a great support system with my family and friends but nice to talk to others that understand more of what I go through and of course hopefully help others along the way! You can
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Interests
Music, all kinds but Aerosmith is my fav, love going to concerts, taking walks or bike rides when I can, enjoy poetry, painting, working in yard, spending time with family and friends and helping others, watch those crazy reality shows ..shhhh don't tell anyone:o) Also use MySpace sometimes if you have an account let me know :)
Music, all kinds but Aerosmith is my fav, love going to concerts, taking walks or bike rides when I can,
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Hugbook
Ray of Sunshine
Hey...thanks.. yepp got it done.... lol.. took a whole day off... took it easy just sat out in the Sunshine....felt soooooo Goood.....
gonna start my last project for the winter.. three small activity tables... then i'm lockin up the shed till next spring lol...
take care.. thanks for thinkin of me.. your friend Russ
Funny Face
Hey...hanging in there. Just got busy this summer and it's carried over into fall. And I'm not really doing that much, it just seems like it. Hope you are doing well. The Tysabri is ok...I feel weaker and it seems like my limp has gotten worse, but I'm also tired all the time. Don't know if that's the season and time change or the MS.
Big hugs!-
Thanks
thanks you too..so far enjoyin the sunshine here.. best wishes
Flower
Hi sweetie! I'm so sorry to hear you are not well hun. Your strength and determination is really inspiring. hang in there sweetie and i pray things get better for you really soon. You are such a strong person! I'm so glad you are not in the hospital at the moment, but if you have to go in just know you are in my thoughts hun :) I want you to get better really soon, get lots of rest and keep that strong fighting spirit you have :) I hope your dr and neuro can help you more hun. remember i am only ever a message away if you need to talk about anything hun. Always here for you :) I'm okay thanks hun. Had a bit of a tough period and had some tests done but i just have a virus that i am recovering from. Other than that things are going well thanks hun :) Take care sweetie and so good to hear from you. Keep me updated when you can how things are going for you? Luv, hugs and prayers x
Hug
HUGS FOR YOU
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Support Groups
Close Multiple Sclerosis (MS)
Type: Relapsing-remitting MSI am 36 and was diagnosed with RRMS July 2004. Talk about a roller coaster ride!! It definately comes with daily struggles but I try my best to stay positive and always tell myself "THIS TOO SHALL PASS" sometimes easier said then done but hey gotta try :-) I have 2 beautiful children that keep me going! I hope to meet more wonderful friends along the way to help keep us going!
Treatments
- Baclofen Working / Worked
- Xanax Working / Worked
- works...but do like klonopin better
- Adderall Working / Worked
- seems to help some with my fatigue as Provigil worked well but gave me too much anxiety.
- Ambien Working / Worked
- ACtually Ambien CR to help with sleep
- Baclofen Working / Worked
- Copaxone Too Soon to Tell
- Horrible experience , regret the first injection!!! Unfortunately I just had to start on these again since big changes in last MRI's hope it works better this time!!!
- Cymbalta Somewhat Helpful
- Was put on for depression and for my pain, ended up taking myself off of it though about a month or so again.
- Duragesic Patch Working / Worked
- They let me live a little!! Take 125 mcg every 48hrs, they make it more bearable most days. Best thing I found so far to help!!
- Epidural Injection Working / Worked
- Helps some with the arthritis I have developed in my tailbone and all my messed up discs
- Hydrocodone Somewhat Helpful
- actually use vicoprofen...use this along with Pain patches for breakthrough pain
- Klonopin Working / Worked
- been on this for years first for anxiety/panic disorder but works for that and also my spasticity.
- LDN - Low Dose Naltrexone Considering
- Worried about how we will control my chronic pain since I will have to go off my Duragesic Patches?? So confused and still considering?
- Prednisone Working / Worked
- awful side effects though and can we say marshmellow face :-)
- Provigil Working / Worked
- works well but had to go off of because raised my anxiety way too high
- Rebif Not Working
- body rejected it , was worse off on it then without it , brought out so many symptoms that I am still stuck with today
- Requip Working / Worked
- Seems to help with my RLS but makes me tired
- Seroquel Working / Worked
- put on to help sleep and relax
- Solumedrol Somewhat Helpful
- Caused a lot of sx that didn't seem worth it!
- Support from Friends & Family Working / Worked
- So thankful for the WONDERFUL support from family and friends don't know where I would be today without my angels :-)
- Xanax Working / Worked
- XR formula ..works...but do like klonopin better
- Promethazine Working / Worked
- seems to help most the time with nausea, just have to take highest dose and every 4 hours
- Antivert Working / Worked
- sometimes it does ,sometimes it doesn't
Close Chronic Pain
With combination of MS , arthritis and Fibromyalgia I suffer everyday with Chronic Pain
Treatments
- Duragesic Patch Working / Worked
- Started on 50 mcg but had to be upped to 150 mcg now and some days that just makes it bearable.
- Hydrocodone Working / Worked
- Helps some for the breakthrough pain.
- Epidural Injection Working / Worked
- never again!
Open Fibromyalgia
Was hoping I just had Fibromyalgia when I was going through testings for MS but got both deals instead :-)
Treatments
- Adderall Working / Worked
- Does seem to help with fatigue.
- Duragesic Patch Working / Worked
- Makes most days bearable.
- Xanax Working / Worked
- works but do like Klonopin better!
Open Parenting Teenagers (12-18)
I have a 12 yr old son and a 15 yr old daughter
Treatments
- Education (School) Working / Worked
- Patience Working / Worked
Open Insomnia
Awful to be sooooo exhausted but still not sleep...as you all know if you are in this as well...
Treatments
- Ambien Not Working
- Tried both regular and CR...just recently switched as wasn't working what little if any it did before
- Lunesta Too Soon to Tell
- Tried before ....didn't work and what a nasty taste!!! When they said possible side effect they weren't kidding. Just started taking it again tonight but as it being after 2 AM I am not too hopeful
- Restoril Not Working
- Just stopped this again after trying it after the Ambien CR and before Lunesta again...yuck!
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