Hugbook

Give MGgirl a Hug

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  Vintage68 (04/14/08)

  hey lil' flake how ya doin'?? hugs liana
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  rhulce (04/10/08)

  Thanks for the hug. How are you doing? I started with eye blurriness and double vision last year. Am on Mestinon for that. Then in January got bronchitis then pneumonia which exacerbated the MG. Now I have generalized MG. I lost my voice, have breathing problems, and weakness in my arms and legs. I don't have a thymoma so no surgery for me. I am waiting for an appt with an MG specialist. I have to travel 4 hours to see one. But my doc wants me there because he isn't sure how to deal with me and my meds. So am just dealing with the problems and waiting. Hope you are doing fine. Take care of yourself. Hugs, Becky
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  Vintage68 (04/08/08)

  hey lil' flake..how are you?? how is it going with jennifer,the twins & their mom?? hope you are feeling good..have you see your doctor re: the surgery..keep me posted hugs liana
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  rhulce (04/04/08)

  Have you had your surgery yet? Hope all is working out for you. Keep us posted. Hope all is working out with your friends also. Hugs to you. Becky
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  Vintage68 (04/03/08)

  i hope all worked out with your friends..i hope you can get jennifer back on the right track...and i hope all works out with the twins too...keep me posted..lots of prayers to my lil' califlake..hugs liana
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  kluvswt (03/31/08)

  just wanted to say hi and hope you are blessed by our Good Lord today!!
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  Vintage68 (03/26/08)

  hi stephanie, you are very welcome..i've always loved snow & snowflakes & it was soo weird when i found out we were called snowflakes..it fits us all so perfect..i always thought i was nuts when i would have a symptom, but they didn't know what was wrong..now i just tell people see i'm not nuts i'm just another flake LOL!!!! anyway keep me posted on the surgery..i will be with you in spirit :0) take care little cali flake..hugs liana
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  Vintage68 (03/25/08)

  hi mggirl & WELCOME!!!! glad you joined the group..keep us posted on your surgery & even though i haven't had it done yet(??) if you ever want to talk feel free...mg is a hard disease especially for a young person..i wish you blessings & prayers..hang in there..did you know mg people are called snowflakes, because they say no two have exactly the same symptoms or reaction to the treatments we are all unique in our own way..just like a snowflake..anyway..nice to meet you..liana
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  NicoleTempest (03/24/08)

  Just wanted to let you know there are people out there who understand and if you have any questions let me know.

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