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snooksmama 
8:47am, August 19, 2009
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About Me
snooksmama
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About Me
Registered nurse, diagnosed with endometriosis at age 23, with rheumatoid arthritis at age 42, though I think I had the beginnings of RA in my early teens. I am married and work full time as an admissions liaison nurse at a rehab hospital. I can't do bedside nursing any longer due to my RA. I have a 19 year old son who was diagnosed with juvenile ankylosing spondylitis at age 12. He is in remission now and doing just great. I'm still madly in love with my hubby of 27 years. My hobbies are cross-stitch, photography, my cats, gardening, and traveling with my family. We also enjoy camping and the great outdoors.
Registered nurse, diagnosed with endometriosis at age 23, with rheumatoid arthritis at age 42, though I think I had the beginnings of RA in my early teens. I am married and work full time as an admissions liaison nurse at a rehab hospital. I can't do bedside nursing any longer due to my RA. I have a 19 year old son who was diagnosed with juvenile ankylosing spondylitis at age 12. He is in remission now and doing just great. I'm still madly in love with my hubby of 27 years. My hobbies are cross-stitch,
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High Five
Thank you! Hope yours is wonderful as well!!
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Thinking about you as you wind down 'til tomorrow. i hope you start finding some magic. hugs, doug
Flower
I am feeling really good here girl, had xrays yesterday, go to get blood test next month and then back to the RA Doc- -had a good week, hubby was off for the week, so we went to see Scrooge in 3-D with Jim Carrey, so very good, then tonight went to go see New Moon- Twilight movie, so silly, we walked out half way through it LOL and I sure hope you have a good weekend and a super upcoming week and feeling so good =)
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Thanks for being concerned about the lupus. Yes he did the blood work and the DNA proves I have it. Am I not lucky or what??? He is sending all the reports to ,y rheumy so he has the info he will need. Heres hoping you can get a handle on your belly!! hugs sandy
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Hi Cutie. I was gone all day day, so no chance to answer your email. But, stay tuned... my rheumy is actually supportive again, and I'll have another Rituxan treatment next month. Hig calcium and high potassium, apparently???? They were og 3 1/2 weeks ago, so I wonder what gives. Email coming after dinner. Hope you're feeling OK. hugs, doug
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Support Groups
Close Rheumatoid Arthritis
Diagnosed 5 years ago. Watched my mom suffer with it for years until her death at age 64 from breast cancer. I am now on methotrexate, prednisone, naproxen and Orencia infusions.
Treatments
- Arava Not Working
- caused numbness/tingling in feet, diarrhea
- Celebrex Not Working
- didn't help
- Enbrel Working / Worked
- worked great for a year. had to go off when i got pneumonia. when i went back on it didn't work anymore
- Humira Not Working
- never helped
- Methotrexate Working / Worked
- on for 3 years. helped a lot at first. Took it orally and it caused massive diarrhea a few hours after. Switched to injectible which I've been on since 2007. Still taking in combo with my Orencia.
- Orencia Somewhat Helpful
- started in november 2007. I get about 2 or 3 weeks fairly good relief after each infusion. Awaiting FDA approval for Actemra.
- Rituxan Not Working
- had anaphylactic reaction...very very scary. severely allergic.
Close Arthritis - Juvenile
My son has juvenile ankylosing spondylitis.
Treatments
- Methotrexate Working / Worked
- Enbrel Working / Worked
Open Alport Syndrome
My son was diagnosed at age 14. He is doing well now, at age 20, but I like to keep up with this disease
Treatments
- Cozaar Working / Worked
- he stopped spilling blood and protein and hasnt even needed his dose adjusted in 7 years!
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