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Sandrakg 
12:53pm, June 22, 2009
Im looseing track how many meds ive tried but im frustrated getting rides to dr every month to change meds since nov 2008 and still have pain and even worse and feel worse .I think its time to go to another type of dr for fibro.now im on lexapro and neaurotin and im knocked out all the time . I was already sleeping to much
. but now i have really bad dreams before I ws sleeping good and nice dreams but every med dr gives makes me dizzy nauseated and gain weight except cymbalta i was loseing I lost 4 lbs . not much but i havent ben able to lose at all. my legs hurt my feet hurt and like always blood work came out great Im very blessed and thankful for that but its not telling whats wrong with me.nothing else new to tell still have all same frustrations keeping our home from foreclosure and changeing pymts and worry about it not helping much at all. hubbys backs worse dont know how long he can keep working to pay bills and house . im praying and taking 1 day at a time. thank god my blood work was good .just feet hurt so bad and its not veins drs are stupid sometimes suggesting its veins when dr just gave me doppler scan on veins geeze 
this is just an update finaly got ds email I hadnt received it in years so now maybe I can reply to ev1 . sorry I havent been support was so frustrated and sick kept to myself thinking . sometimes thats best. god bless you all im still including you all in my prayers. and think of you. hugs Sandy
Comments
Hugs, Sandy, I have been frankly unable to answer so many messages over this past year, that it seems I have to post most of what I have to say in my journal. I am blessed to have a number of DS friends, but just can't keep up. But I just now am getting back to you, at least to post something. You are in a dilemma that is enough to try anybody's soul, hon. With all the stress and too many problems, it is part of your overall picture that produces all these symptoms that are very real. Diagnosis is one of the toughest parts of medicine, and I have taken issue with many, many doctors, ( but not personally in front of them in any sort of confrontation), but quietly in the frustration deep within my mind and soul that the current medical situation in this country is to deal with people as numbers. That produces a very negative response from many of us who do have some idea of our problems, and can't get these doctors to TALK to us. Most of them are fighting the clock, in these big HMOs particularly, and they just shift us around from one specialist to the next. I just cannot be sure of what all diagnoses you may have, but they are treating most of it, from the sound of it, with anti-depressants. You mentioned doing pretty well on Prozac, and it is not a controlled substance, and multiple meds, like Cymbalta, and a host of others can produce the side effects of lethargy, plus interfere with some of the other meds you may be taking. The liver is also affected that has to process all the meds, and thus the side effects can be very significant. With your husband so bad off, and I'm sorry to hear that, it's no wonder you are stressed out. It is enough to cause such misery, and I know all too well about that. Some meds are bad about causing weight gain too, and that is a tricky gamble. Cymbalta causes some to gain weight, and of course that every cursed problem so often mentioned of DIET is another factor. We tend to eat, in many cases, too many refined foods and diet drinks that have certain toxic effects. So when all the stress, the meds, and the diet is a factor in all this, the doctors just don't take enough time to deal with the multiple disciplines required to deal with the whole disasters caused by basic stresses of life which can become an increasing snowball from hell. If they mention "veins", I assume they refer to varicose veins. This can be significant along with the weight factor. But it's so much a Catch-22, no-win situation that many millions are doomed to this endless merry-go-round of too many stressors in our lives. So to enjoy at least being able to eat becomes in part an aggravation from the standpoint of weight gain.
If you are not overeating, ( but most of us are), then activity levels need to be increased, but that's nearly impossible due to the fatigue due to all the stress. So on piles on top of the other, and you may have venous pooling with the increasing problems of this effect. I assume you have had some check-ups for any vascular problems, but the list of tests and check ups becomes endless after awhile. So we come home, still tired, feeling hopeless, watching our loved ones sick and suffering, while doctors run us through a lot of junk, like cattle through the chutes. There is too little compassion, and the medical people in too many cases are overworked, and required to see too many people that limits their time for talking and evaluation, and with all the high tech junk, they send us off for all these tests, and too often come back with "depression" as the answer that is the ususual "cop-out" when they can't find anything else to diagnose. Overall it is a very tough situation, and I know you are literally sick and tired, like millions of Americans who are getting nowhere with the medical community. Most doctors do not like dealing with chronic disease or disorders until they are too painfully evident, and sometimes too late to treat. So they prescribe a lot of meds, some of which are useful, but many do not know the side reactions of many things that you may be taking. Many doctors don't communicate with possibly others you are seeing, and some end up with more meds that interfere with each other. It's a huge mess of problems, and stress that affect us, dear heart. You have my empathy as I know you've had chronic problems a long time now. I have too, along with my wife and our poor daughter been worn out with too many doctors. Recently, they have been hammering at her to have a breast biopsy done that is nothing new after finding another lesion deep in the right breast, but probably a benign cyst commonly found in many women. She has had fibrocystic lesions removed before, and is sick and tired after a very rough stomach surgery nearly 3 years ago. She had fainting spells constantly after that for 2 years, and finally has confined herself to home. There is not one doctor who can account for all this fainting except with a useless diagnosis of "idiopathic syncope",,which simply means, fainting without a known cause. Geezz, a lot of help that is,,NOT. So I she and I both are very reluctant to see her have any more surgery done at this time until we KNOW what caused the fainting spells, and severe fatigue she also suffers,,ONLY after that surgery.
I wish I had the answers for you, hon, but just cannot fathom all the symptoms and facts without knowing a lot of information, and yet I'm still not qualified to pronounce any diagnosis within my limitations. So I watch my daughter and my wife slowly going downhill and have to take a few meds myself. I have little trust in some of our doctors now, and we had a very bad experience in the ER the last time she was hauled in there for a fainting episode, only to find as usual, NOTHING of note. They sent her to some 6 cardiologists, who can really find nothing of heart significance. The last visit to one was last year, and he was a jackass. So naturally we are very tired, angry, and do not trust them much anymore.
I wish I could write better news on my end, but you have enough of your own problems to deal with, and here I am writing a long piece that is of no help to you. I wonder if you have gut problems, and a lot of things, and other tests? But it's like opening a Pandora's box of problems that sometimes I wonder if it's best not to know. Anyway, I think of you, dear heart, and am very sorry for your situation. It is very worrisome I know, and all I can do at this point is offer my sincere empathy and hugs to you. May things get better with time. Affectionately, Goliad
Goliad
thank you Goliad Im sorry I hadnt checked my messages its been so long I lost my password you are blesed that your family is still with you hun . after all the health issues your family has dealt with im supriced there surviving. which is a blessing . Sorry we both seem to have no good news. I do have a cell phone and can call now and trying to pay house off so there wont be foreclosure but other than that I guess im blessed that drs dont find anything serious wrong but still I have my pains and tired and lonely because I should leave hubby or not put up with him being an ass IVE accepted it only because I know hes in pain and trying to work and I couldnt do that myself and we will have 37th anniversary this August to long to share with someone to give up now. but its not worth haveing no one to love you and show it better than my hubby is right now, he loves me but horrible showing it any more.I miss a tender careing touch or a nice calm careing conversation with him . feel as though ive lost my partner to grow old with. we need to talk about it but hes hard to be close anymore and he knows theres something wrong/ well your family has never stopped being in my prayers and ty so much for your long letter back to me its nice to know someone listens and writes there view it helps more than you know thats what ds and support is all about. hugs Sandy
Sandrakg