I have been sick nearly 4 years, …
I have been sick nearly 4 years, and have recently received some diagnosis. The crazy thing is the doc said …
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Ali5tair 
Have been really bombed latley,
Its now 1 and a half weeks since I got back from Melb and the De Meileir appointment.
My guts has been off the scale bad.
Whenever its bad I am in a world of hurt with much less energy than the normal low energy state. I spent an hour sitting planting out seedlings this arvo and even that bombed me. Had to sleep for 3 hours. My sleep patterns up the gazoo. Whenever I am bombed I crash heavilly and have to sleep whenever I crash so it gets out of wack really quickly. Am awake for 18 hours in 24 but that 18 hours is all over the shop. At least there has been world swimming championships and Ashes cricket when i am awake at night. Thankfully I can still fall asleep in front of the idiot box when my body is ready to sleep and have done so in thelast week. Normal healthy people havn't got a chance of understanding what CFS is like, like when you run out of energy half way through something and have an incapacitating headache and cant do anything else but crash and sleep. I couldn't even stay sitting outside in the beautiful winters sun.
At least I am starting to feel that rest is equalling the exhaustion my body accumulated on the trip to Melbourne.
Al
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I really hope things begin to plateau for you soon Al. Thinking of you watching the Ashes - Gareth is outside weeding the drive with walkman radio plugged in listening. Have just taken him a sun hat as (surprise surprise) we have lovely sunshine today. God bless.
Love Jen x
JenCG
I hear you .... being in the sun for long makes me very nauseated! I'm glad while you're awake you've got games to watch! I can't remember. Do you take any sleep aids? I do and couldn't function w/out them. Sometimes I wonder what would happen if I just let my body "be" and react to things on its own.
Menemsha
I am sure you are paying back sleep debt from your trip Al!!
I do hope you are able to catch up! I know I can do very little in the sun...espcially if there is humidity as well. I'm a winter person, since CFIDS!!!
You're a brave guy Al....good job on pushing forward the way you do. It's inpsirational!!
DarlaC
Sorry to hear how debilitated you sound: it does bring back bad memories. Get as much rest as you can, & then some more. Please answer my questions in prev. Comment wehen you can. All the best, Jane D.
JaneD
You are going through the fire. I am so sorry about all this. Please know I am sending you well wishes.
I know you have tired everything to get sleep and I feel foolish asking but will, have you tried melatonin?
Iloveflowers