Jazzy and De Meirleir
November 4, 2009 8:55pm
Thats very sad news.Jazzy (Fantail) was a honey.I will sure miss her.Thankyou very much for letting me know.I am coming to terms with what De …
Progress
50 %
Ali5tair 
-
About Me
Ali5tair
-
About Me
Married, four children, Qualified Avionics Technician & Telecomunications Technician aswell as a Domestic Carpenter. These days the cuddles from my woman and children go a long way to filling the enormous void in my life.
Married, four children, Qualified Avionics Technician & Telecomunications Technician aswell as a Domestic Carpenter. These days the cuddles from my woman and children go a long way to filling the enormous void in my life.
-
Interests
Prior to Gulf War Syndrome and Chronic Fatigue Syndrome I used to do a lot of sport, I love Cross Country Skiing, target shooting, playing golf and fly fishing all of witch I can no longer participate in. I love Antique furniture that has really good sense of proportion and great functionality to go. I like fibonacci constants and learning how to understanding patterns, subsequantly I love to watch and understand markets behavior, mostly commodity futures markets. Its been a really hard discipline not to trade the commodities markets over the last four years while I have been sick but one I've almost religeously kept. I love the application of logic weather it be in electronics, politics, science, maths, nature or anywhere. My political heroes are Mahatma Gandhi, Lech Valensa, Rev. Martin Luther King, Daw Aung San Suu Kyi and Nelson Mandella. Note there are not any Australian political role models that I have identified. Fidel Castro (CUBA) and Hugo Chávez (Venezuala) may also join the list if they prove to be above corruption.
Prior to Gulf War Syndrome and Chronic Fatigue Syndrome I used to do a lot of sport, I love Cross Country
-
-
Recent Activity
Recently:
-
6 hugs received, 4 hugs given, 1 discussion post, 1 journal post
Friday
-
Ali5tair changed their mood to OK 8:42am
Thursday
Wednesday
-
Ali5tair wrote a discussion post in the Chronic Fatigue Syndrome support group: Will miss Fantail loads. 9:42pm
I got an e-mail earlier today from Jen letting me know that Jazzy had passed away. Its been a very still…
-
Ali5tair gave Prairie a hug 8:57pm
Plenty of Hugs Al…
-
Ali5tair wrote a journal entry: Jazzy and De Meirleir 8:55pm
Thats very sad news.Jazzy (Fantail) was a honey.I will sure miss her.Thankyou very much for letting me…
-
-
Journal
-
-
44
October 28, 2009 5:21pm
A major Gann number minus 100. Its a Master number. 44 is a powerful number, because the 4 resonates with paying attention to detail and building a …
-
Entierly my fault
October 18, 2009 9:03am
The fact that I still feel socrappy today is entirely my fault.
Lastnight I accompanied y wife for only the second time in 5 years to her work AGM and …
-
On tender hooks.
October 17, 2009 10:29am
I'm on tender hooks. I cry easilly latley. I'm anxious about the app with De Mierlier in late Oct. I would like all the nice neet …
-
Been away in deep thaught.
October 17, 2009 10:27am
Been away in deep thaught.
Think De Mierliers diagnosis of Not just CFS Alistair but you have Gulf War Syndrome has knocked me for a loop. I cant get …
-
-
Hugbook
Hug
Good to hear from you hugz
Moment of Peace
Morning Al, just commented on your journal!! Weekend hugs!
-
Rainbow
Hi Al!! Hopeing you are doing ok over there!! oxoxoxoxo
-
Funny Face
Hey Al waving at you from up north with a silly face....hope you are back safely and not too exhausted from your trip to Dr M...let us know how it went ??? hugz Julie
Ray of Sunshine
Hello there,
Been lost in Depression Land! - Don't think you are likely to have Lyme, A - unless you've lived in the US - it's carried by a parasite (sort of flea) of animals in the US - notably deer! - not surprised at the Gulf War Syndrome: were you anywhere near incinerated Iraqi tanks? - you Immune System sounds thoroughly exhausted - the B12 injections are really good eh? Had them once every week for 12 weeks (sadly, my allergist returned to the UK). I take multiple vitamin tablets, & ones for nails & hair (mine crack up). Still plagued by migraines, but back on Sandomigran(Pizotifen) - this is effective in 70% of cases, & works for me! telling you, as it's not available in the US, but is in Oz. Hope things are improving - you are lucky to have family. Only 1 of my kids keeps in touch - others think I "invent" my symptoms - well that's what their partners say, & they believe them. JaneD.
-
Photos
-
Advertisement -
Goals
View all in progress Goals
-
Support Groups
Close Chronic Fatigue Syndrome
In 2003 I was very stressed at work. In 2004 I became very sick with what turned out to be Barmah Forrest Virus (Mosquito borne disease)and posative Hep-A. Since 2004 I have continually suffered from chronic muscle pain, headaches, periferal neuropathy, servere food intolerances, IBS-d, and depression. I lost my job. We have no money but we are ploding along day at a time. Life sometimes sucks. Very very very slowly improving.
Treatments
- Cognitive Behavioral Therapy Working / Worked
- Talking about it with a suitable qualified and experianced psycologist/counciler works.
- Lexapro Not Working
- Didnt notice it improve anything, Total sexual disfunction
- Pain Management Clinic Working / Worked
- It helped me get of a bunch of prescribed drugs that my specialist Immunologist/Allergist said may be causing the fatigue
Close Fibromyalgia
Hi. Was diagnosed with Fibro 4 years ago around the same time as CFS. I had been suffering virus like symptoms for 9 months. It turned out to be Barmah Forrest Virus. I've never really understood the differance between Fibro & CFS, all I know is that my body aches like blazzers, sleep is difficult, I've fifty squillion food intollerances, neck regularly goes wry, my muscles feel like they are on the verge of cramp, I have servere pins & needles in my hands & feet, occasionally my arms & legs.
Treatments
- Acupressure Working / Worked
- Acupuncture Working / Worked
- Find a good one.
- Aqua Therapy Working / Worked
- Morphine Working / Worked
- I have a vulnerability as I know I suffer from addiction to this stuff verye easily. I was on endone for about a year and it was very hard to get off.
- Vitamin B12 Working / Worked
- My Dr trained me jab this stuff into my leg every month. B12 really works well.
Open Sjogren's Syndrome
My Immunologist last year diagnosed me with a "Disease of the Auto Immune System". When I pressed him for more he said he thaught it was Sjogrens Syndrome. His diagnosis of a AI Disease was based on Shermer Test=0 and a Parotid Sialography that showed all my cranial salivar glands to be shot.
Open Depression
Type: Clinical (Major) DepressionI was diagnosed with Depression in 2001 after someone decided to set fire to my house. The someone turned out to be one of my troops after he had been out for a night on the town. Incident threw me for a wobbly. The shrinks prescribed me Anti Depressants galore but we couldn't find any that were satisfactory. My Imunologist sais AD's may have triggered CFS & Sjogrens Synd. I have always claimed since CFS in 2004 that I am depressed because of my loss of streangh and endurance due CFS.
Treatments
- Celexa Not Working
- Total sexual disfunction (TSD).
- Cognitive Behavioral Therapy Working / Worked
- Directly proportional to the practitioners skill level. A skilled shrink can provide great CBT. A lousy shrink will provide lousy CBT.
- Effexor Not Working
- TSD
- Lexapro Not Working
- TSD
- Meditation Working / Worked
- Psychotherapy Working / Worked
- Works best.
- Zoloft Not Working
- TSD
Open Chronic Pain
Had Barmah forest Virus in 2004 and been in a lot of pain every day since. Diagnosed with CFS/FM in mid 2004. The pain feels like I've a sumo wrestler twisting each lim. My muscles feel like I've done a savage workout,they are constantly on the verge of cramp. I get exhausted easily. I used to do stacks of sport. I used to be able to ski International Loppet Events, race 60Km plus. These days if I walk 1 km its a big day and I have to avoid crashing by taking water and my rescue foods with me.
Treatments
- Acupressure Working / Worked
- Good stuff
- Chiropractic Adjustment Working / Worked
- Very good though have to take it gently due CFS. My Chiro tels me that I am in pain longer after a session due the CFS, hence spacing sessions out every 2 weeks
- Heat Working / Worked
- Cant hack full body heat like a sauna due CFS but localised heat works well.
- Meditation Working / Worked
- I do it to a tape. Its a nice way to escape the pain. Pitty you cant perminantly put pain on hold so effectivly.
- Morphine Working / Worked
- I have to be very carefull about adiction to this stuff. It was hard/hell getting of it 2 years ago
- Physical Therapy Working / Worked
- Physio works
- Sleep Working / Worked
- Sometimes I can avoid pain to a degree by sleepingnot moving.
Open Sports Injuries
Type: Anterior Cruciate Ligament (ACL)As a kid sport was the thing that I enjoyed the most and was best at. Aths & Rowing in the Summer, Soccer and X-Count'y Ski in Winter. Never allowed to play Rugby Union but its still my favorite football. Sporting injuries are in my legs due to triple jump and V' ball falls. Major Ankle reco's, knee reco's x 3. 3 x maniscal arthroscopies. Had to learn to walk 3 times. Cant run anymore, have CFS running was my escape. Put on the Air Pegasus do 10 kms followed by a hot bath, Aaahhhhhhhhhhhhh.
Treatments
- Acupuncture Working / Worked
- very Good
- Heat Working / Worked
- After the inflamation and RICE is complete.
- Ice Pack Working / Worked
- Rest Ice Compression Elevation for 3-5 days followed by warm water and physio.
- Physical Therapy Working / Worked
- Always works.
- Surgery, Knee Replacement Working / Worked
- Yuck but works
- Swimming Working / Worked
- Very good, You vomit a lot to begin with when post knee or post ankle surgery but swimming is very important part of Rehab.
Open Irritable Bowel Syndrome (IBS)
Got IBS-d after a Virus (Mosquito borne virus). Didn't have a clue what was going on. Took 9 months to even begin to work out the Immune system intollerance to previously safe common foods. My Doctors in the Militry had no clue. It was a Specialist Allergist / Immunologist who found all the dietry intollerances. Im IBS-d post Infectious often catagory 7 for people who know what that means. Rescue foods are beef, chicken, rye bread, oats, apples, peas, pears, lettice, grated carrot & rice milk.
Treatments
- Acidophilus Working / Worked
- Good, Have to investigate the right strains that are missing via a Biofecal analysis test
- Aloe Vera Working / Worked
- Drink it, want to grow it.
- Avoid Certain Foods / Chemicals Working / Worked
- I'm totally intollerant to all Dairy, Wheat, and anything with high Amines and high Saliscilates in them. Eliminating the danger foods is essential, along with eliminating foods high in preservatives.
- Buscopan Somewhat Helpful
- Used it had to find what was triggering it to avoid the distress.
- Chamomile Working / Worked
- OK, I dont react to it.
- High Fiber Diet Working / Worked
- Important that it has to be SAFE high fibre foods. Everybody is differant. Its the individuality of each persons immune system and how it interacts with food threats.
- Imodium Somewhat Helpful
- Used it but I had to find what was triggering it to avoid the distress.
- Peppermint Not Working
- Triggers cracking migraines
- Probiotics Working / Worked
- Very very good if you can find the missing ones via a Biofecal analysis test.
- Psyllium Somewhat Helpful
- I wish I could get in to the habit of taking it regularly.
Open Migraine Headaches
Had migraines on/off for 20 years. They got really bad when I was Dx with CFS. I'm sure its to do with toxins. It took 18 months but we eventually hoaned in on the triggers, worst triggers are High Amine foods. I minimise them wherever possible. Oxygen therapy works. Cant take pain killers as my liver is damaged. Avoid foods, rest and oxygen therapy are my salvation for day to day life. I think Toxins are affecting my Endocryne,Immune and Nurvous systems, I'm reading all I can about this stuff.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Utterly essential. We knew something was triggering migranes as I very frequantly had chronic diarrhea. With the expertise of a Allergist/Immunologist we discovered and isolated my trigger foods. Its all about Toxins. Toxins that our body misidentifies and toxins our bodies cant get rid of quickly enough. I beleive Migranes are backlogs of toxins, Oxygen is diverted to deal with the toxins and as a result out brains are limited with the amount of oxy they recieve, mence low oxy flow to brain.
- Magnesium Working / Worked
- Essential
Open War & Terrorism
Was ADF Militry for 14 years Army for 3 (RR) and 11 in Airforce. Unscrupulous Governments who covert other nations resources sometimes spin furfies via the media which persuade the gullible masses to support going to war. Falklands, Timor, Gulf War 1 and 2, they were all about controlong Oil and Gas reserves. I've done the research, I've spoken with the Heirachy they informally acnowlegd this truth. Sad isn't it.
Open Lyme Disease
I've been tested for Lyme twice but tests are negative. I dont have a bullseye mark either but I got sick 4 years ago so I could have forgoten about it. I have CFS, Fibro and Sjogrens and am joining this group to find out the inside info on Lymes. Lyme litterate Dr's sound as scarce as CFS literate Dr's.
Open Mononucleosis
I had EBV when I was 21. I frequantly test posative to it. It really confuses Dr's.
Open Environmental Allergies
Type of allergy: Multiple Chemical SensitivityPrior to 2004 the only thing I was allergic to was 'smoked'herrings as 'mop roles' from Holland. In 2004 Ibecame sick with Barmah Forrest virus (mosquito borne). Now I am allergic to pollen, Dust and I have multiple Chemical sensitivities. I have @100 food intollerances , the most noticable are all dairy and all wheat. I have just learned I am suffering from Mercury poisoning. I think this could have been the cause that initially weakened my immune system.
Treatments
- Rhinocort AQ Working / Worked
- Works
- Sudafed Working / Worked
- Always works
- Zyrtec Working / Worked
- Works
Open Heart Attack
I learned someting eally god today about Heart Disease. Have a Live Blood Analysis done. Check out; http://www.nutriscreen.com/art_prevent.htm
Open The Financial Crisis
Had my own Investment buisness for 4 years Chronic Fatigue and Depression ment I couldn't trade so I put everything on hold 2 years ago. I am still a keen student of the market and watch Commodities,Currencies and stock markets daily. My buisness partner and another associate could see this massive market correction coming as far back as 3 years ago. Al
Open Gout
Had gout again for the second time in my life in Dec '08
Treatments
- Celebrex Somewhat Helpful
- Must take it with food
- Cherries Working / Worked
- By far the most successful treatment , tart cherries rule.
- Colchicine Not Working
- Doesn't seem to work for me.
- Dietary Modification Working / Worked
- Stoped eating Oysters. Cant eat most of the Gout causing foods as they induce IBS-d as well
- Indocin Not Working
- Didn't work for me. Did nothing except upset my tummy. Gout still raged while I took this medication.
Open Crohn's Disease & Ulcerative Colitis
One of my friends has Ulcerative Colitis. I want to learn about itso I can support people who suffer from it. Al
