Journal

I suffer from chronic pain. Secondary to 2 illnesses. Histiocytosis AKA Rosai- Dorfman Syndrome and Trigeminal Neuralgia. Due to the Histio, 85% of my nasal cavity was removed. I do not have functions like a normal person does. No turbinates, no maxillaries, frontal, nor ethimoids sinus. All of them had to be removed on 02/1997. This created the problem, that I do not drain, so surgically, I was clean yearly from 1997 till 2002. This was done in order to get all mucous (gunk and junk) off my sinus cavity that by not having the normal structure had to be done these way. In the mean time the unavoidable was happening. Nerve and tissue was being disturbe. That is how I got my Trigeminal Neuralgia.

The headaches were awfull. They ask you to measure on ascale 1 to 10. I can only answer 100, because is that bad. My doctors are the best. They sit with me, hear me and are part of my pain. It is just frustrating that there is not a miracle pain pill that will take all this pain away for ever.