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sarah101 
2:17pm, August 8, 2008
Haven't done this bit yet so thouht I'd give it a go...thought I'd start with brief intro..
I have had symptoms of CFS for 15+ years and was given official diagnosis about a year ago. (Extreme fatigue, headaches, sore throat, alcohol intolerance, muscle weakness, dizzness, brain fog, recurrent long lasting viruses...the list goes on!) I also have clinical depression and pcos. I do not have anaemia or underactive thyroid (been tested loads!). I also have little or no physical pain apart from headaches and occasional achy legs when I've been on my feet alot. None of the joint or muscle pain most other cfs/me sufferers have.
I live and work in a beautiful part of one of the most beautiful countries in the world - Wales. I love it. Work part time as carer for couple with MS, which can be very tiring ( I'm recovering in bed from yesterdays shift right now!!). But it sort of suits my needs so I'm determined to keep it up even though hard sometimes...Anyway, will add more later as energy and looming migraine permit...!
Sarah.
Comments
oh... I hope your migraine gets better... They are awful (I am sure you already knew that)
mkat
Yeah, I struggle with working too. I find I have to be very strict about the time I am off, and make sure I rest. I really don't want to and there's so much needing done, but it's definately about working within your energy envelope. I haven't always had the pain - but when I didn't have the pain the fatigue was awful. The feelings extreme fatigue, which is what we experience, is more vague than pain. But as a symptom in itself it's still unbearable. I also find I often underestimate how bad I am just to keep myself going. If I downplay it I don't feel so bad either and believe it's really temporary andwill pass soon. Although I find this doesn't help me to keep within my energy envelope - so I try to be honest with myself and accept I am a good enough and valuable enough person that I am worth being ill. I have a right to not be productive (for a whole year never mind a day) and am still a worthwhile and valuable person. Although life still happens and sometimes you have to push yourself at times, especially when its family related - so please don't feel that I am lecturing you on rest because I know more than most its not easy to get.
Loomcgoo
Just wanted to let you know i really know how you feel. I have all those symptoms too, but i'm going thru a good patch at the moment. I've recently started seeing a homeopath and i've found that to be the biggest help! That coupled with trying to keep up a positive outlook. Altho that can be exhausting in itself! lol
I'm here if/when you want to vent.
xxxx
themoon