Sunday----Sunday
October 26, 2008 4:51pm
Well its a good day for tieing your shoes, its a good day for chasing the blues, yell hallelluah its a good day from morning to nite----------Im …
Progress
5 %
Sib1967
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About Me
Sib1967
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About Me
I have been living with p for many years and I have accepted both the good and bad. I always search for new ways to deal with it. Im married with adult children and a grandson (my passion) I also have a form of md-and and autoimmune problem. My md problem is mysthenia gravis and I really dont like it--I have been treated for it for 4 years and I now take methotrexate and it helps but the side affects are lousy. My hair is falling out and I loose 1-1/2 days out of the week. But, I try to keep my droopy smile
I have been living with p for many years and I have accepted both the good and bad. I always search for new ways to deal with it. Im married with adult children and a grandson (my passion) I also have a form of md-and and autoimmune problem. My md problem is mysthenia gravis and I really dont like it--I have been treated for it for 4 years and I now take methotrexate and it helps but the side affects are lousy. My hair is falling out and I loose 1-1/2 days out of the week. But, I try to keep my droopy
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Interests
Reading, listen to all types of music, my grandson, and making new friends
Reading, listen to all types of music, my grandson, and making new friends
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Recent Activity
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Journal
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over two weeks------
October 22, 2008 3:10pm
its been a bad week-illness in every corner of my life, tragedy a very kind man killed by a hit and run driver--sadness--its going to be darker …
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a week goes by fast when your having fun
October 7, 2008 6:07pm
So it has been a week since i last wrote in the journal---well i guess things have a way of getting away from ones self--------the methotrexate over …
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why i choose cartoons rather then news
September 30, 2008 7:02pm
so i sit here and watch sponge bob squarepants and i really can relate to him--first he overcomes many obstacles on a daily basis---and he does it …
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Monday Monday
September 29, 2008 6:42pm
You know the saying "you only get what you can handle" well i think i can handle at least a million dollars in one of my accounts or even …
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Photos
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Support Groups
Close Myasthenia Gravis
after alot of tesing (5 years worth) found out i have mg---i have the right facial droop and my face has a mind of its own-i get so tired all the time. now we think we have a mitochondrial disease also.i go to a md clinic in allentown pa thats run by the head of the als unit at drexel university-more tests then i knew existed. i deal with anger and depression, but i like to read so that helps-ive always been a happy go lucky gal and i miss it-married, 2 adult childeren 1 grandson
Treatments
- Mestinon Not Working
Close Psoriasis
Affected Areas: Psoriasis of the Skinpsoraisis for 8 years--used it all but for some crazy reason vicks vapo rub has been working for 4 months im sure the daly will come when it wont. Im 58 female married 2 adult kids a grandson-i think if i were told that ice cream would help i would try it--also dealing with autoimmune and mysthenia gravis-we all love the flake in us dont we-
Treatments
- Betamethasone (Topical) Working / Worked
- not
- Coal Tar Working / Worked
- not
- Dermarest Working / Worked
- no
- Dovonex Working / Worked
- no
- Hydrocortisone Working / Worked
- no
- Methotrexate Working / Worked
- no
- Phototherapy Working / Worked
- no
- Triamcinolone Topical Working / Worked
- Vicks VapoRub Working / Worked
- helping alot i have it on the front of my legs and elbows im no loner leaving a trail of the white flakesnot as much at least
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Groups
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Friends
