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  Ati (06/25/09)
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  dansersousleau (02/14/09)

  Thanks for your info and advice! It's really helpful and much appreciated. KIT
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  oldladybee (11/21/08)

  Hi "mara811." Your message was one of good info, good common sense, and lots of hope. I just joined the group. My sister (age 62)has been dealing with MG for one year; severe form with 3 major crises, heart pace maker put in and even a temporary colostomy. She could not focus, could not swallow, could not stand up, could not write, etc. BUT after three hospital stays and physical therapy,IgIV treatments and stomach feedings, she is improving. She phones me daily, she can drink liquids, she can see well, she can take care of most of her own needs. She kept "the faith" that MG is not a death sentence and that patience and self education can make a huge difference. A good support system is a must; but positive attitude is even more important. There is an actress on "Days of Our Lives" that I believe had MG diagnosed at an age as young as yours (in 1960s or early 70s); she is still acting on the show and works around the down times ... a lovely women and inspirational! Best of everything to you! I hope your up times are many and down times few. oldlady_bee
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  kkfb25 (11/12/08)

  Thanks for the info! Good luck with the Imuran I wish I could take that I have heard some really good results!
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  nightingale924 (08/28/08)

  HI Maria...Im new to the group and I really thought tht your letter was such a great idea. Looking at the positive is important..its easy to think of the scary or negative things about mg..but cant hurt to talk about some good stuff too...so glad your doing so well...thats wonderful...nightingale924
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  jen0517 (05/23/08)

  Hello from a fellow MG patient in Houston. Glad to hear you are doing well.
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  aallen (04/15/08)

  Hi, my name is angela and I am not on predisone now but just had a bad experience, my right eyelid is drooping really bad, what should I do, contacted nuroligist appt end of the month
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  charice (03/21/08)

  you are a strong woman
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  NicoleTempest (03/21/08)

  It's so natural now, adding pills here and there don't even phase me! Sometimes it seems I went from being heathly, rarely seeing a Dr., to all kinds of pills and appts over night. I'm considering seeing an autoimmune naturalpath Dr. to see what recommendations they have to get me on the right track for supplements. I'm also trying to change my diet to be healthier hoping it will have an effect on the MG symptoms. With the prednisone, did it effect your sleep? I have been more tired then usual lately, but unable to get rest. I haven't really noticed any other side effects with it - besides I have to take it with food! Learned that the hard way.
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  NicoleTempest (03/20/08)

  Thanks for the information. Sometimes I wonder if my symtoms are severe enough to start the prednisone, but my swallowing has improved. I still have shortness of breath...not as intense. It feels like I can't get enough oxygen and my heart beats so fast. My neurologist said it would probably be best to start it now before it gets real serious and I have a breathing crisis. Hopefully I won't be on it that long...I would rather save long term treatment of prednisone for when I really need it. Are you also taking any supplements with the prednisone? He also started me on Vitamin D, 50000 IU, once a week.

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