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  • About Me

    Image of kly

    kly

    49
    LaLaLaLa, CA, USA
    Member since March 11, 2008

    • About Me

      Son has undx cataplexy -insomnia with narcolepsy on the side.................................................................................. Me I have RA -Fib

      Son has undx cataplexy -insomnia with narcolepsy on the side.................................................................................. Me I have RA -Fib

    • Interests

      weird thing ........ My groups........... learning to tell someone off(dreaming)

      weird thing ........ My groups........... learning to tell someone off(dreaming)

  • Recent Activity

    Recently:

    • 3 journal comments, 1 group discussion post, 1 journal post

    Thursday

    Wednesday

    • kly commented on their journal entry flu 7:00pm

      up until 300 am-missed class again- teacher gave me his test papers to take home---went to see a Dr --…  

    Tuesday

    • kly wrote a journal entry: flu 11:57pm

      been sick all week -- 3 hours sleep sat no nap -took him to the ER sun 200 am got him checked out- bronchitis…  

    Monday

    • kly commented on Marilynliz’s journal entry Still recovering 6:51pm

      did you get any information on why Drs have a hard time Dx nar/cats and or why they refuse to believe…  

    October 27

    • kly gave malice1 a high five 10:57am

      just found out son gets to reg early--enrollment up 20%- down sized the teachers--choices limited --great…  
  • Journal

    • flu

      Mood November 3, 2009 11:57pm

      been sick all week -- 3 hours sleep sat no nap -took him to the ER sun 200 am got him checked out- bronchitis again got some meds .he can't sleep …
    • dineysland

      Mood October 23, 2009 8:37pm

      out of town -family trip so far so good - seraity not as good as las veges.
    • d day

      Mood October 19, 2009 6:59pm

      Sons planing on telling the Dr he wants another Dr ..The DAD and I well continue talking until he comes to- to finish telling the DR your …
    • shopping

      Mood October 18, 2009 4:18am

      son- daughter and I went shopping-- one of their friends went up behind son and touched his back(trigger) down he goes scares the %$^ out of her-- …
    • time question to ponder

      Mood October 16, 2009 8:51pm

      which is longer a second or a monment,,,,,,,

    Read Journal

  • Hugbook

    Give kly a hug



    • Thumbs Up

      From fibonae October 19

      U GO FOR IT GIRL!

    • Hug

      From malice1 October 10

      I did that right away. lol..I get extra time on all of my test. I'll just have to take more time next week.

    • Funny Face

      From malice1 October 3

      Cant retake the test. Ill just have to do better on the next one. How are you doing?

    • Flower

      From flchristi September 17

      Hi KLy, I know you don't know me but I had an overwhelming urge to send you some flowers(they arent as prettty as the one in your nic. I was reading a page on apnea verses narcolepsy to see how other people are coping. I am going for my first sleeep study on thursday and honestly I am a little neurvous. Not because I am afraid o the test. but because I am exhausted and tired of feeling this way. I am slso having daytime hallucinations that are getting worse and my dreams are very frigthful. So I think I understand some of your frustrations with the sleep doctors and I reallly want you to knuw that I am so terribly sorry for your familys' loss. I also hope that my writing you about this doesn't bother to too much. Lots of gentle hugs and warm thoughts,Christine

    • Rainbow

      From malice1 September 14

      Thank you for responding to my journal. No one ever responds anymore.

    Read Hugbook

  • Support Groups

    • Close Narcolepsy

      kly hasn’t entered any details for this support group.
  • Groups

  • Friends


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