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lupiefuen 
2:16am, June 27, 2008
well, hi to everyone. i saw a second neurologist and guess what he said...... it is all in my mind, because my mom had ms! imagine my shock. well not really, cuz i figured there would be one idiot to come up with something so bright!!! well i see the first neuro on the 22nd. i did recieve a letter from my primary care physician that said there were some changes in my mri, but nothing that looked like ms. i wonder what that could mean, because the two neurologists that saw my mri, both said that the issues they saw in my mri were "birth defects"... what the hell does that mean, if these things have appeared since my last mri. i just really wish that i could find a doctor who knows what the hell is going on. it seems that every day that passes, something new happens to me. this last neuro that i saw didn't even seem to hear anything i said, except for the fact that my mom had ms. he said that a lot of my symptoms were consistent with ms, but that symptoms usually last at least 24 hous at a time. well, one of the above symptoms was weakness in my hands. he asked me when do i notice it most, well when i try to hook or unhook my bra and i can't or when i just randomly drop things after picking them up, or trying to open a bottle of something. i guess he just did'nt consider that this does last all day or week, but i only notice it when i try to USE my hands... duh!!! another symptom was numbness. my arms go numb every time i try to sleep. it wakes me up because it is bothersome. i also had an episode a couple of weeks ago where i wa swlking in the park and my arm went numb, it lasted for at least two days before it flt normal again. i guess he didnt hear me when i said these things all he was thinking was; her mom had ms, so she thinks she has it too. well there have been several other symptoms, and he took none into consideration, like the fact that i cannot even bathe in warm water because it totally weakens me.. i have to sit for at least a half an hour after a shower thats too warm just to recouperate. well as you all know, i could go on forever with my troubles, but i just don't understand how these doctors can get away with just shrugging people off in this way. i am going to contact the ms society in my area and see who they recopmmend for a neurologist. maybe i will have better luck there. well i hope all of you are doing well, and god bless all. thank you for taking the time to read my rambling on.
with love,
laura
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Comments
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I started on August 1st, by walking twice a week, and Taebo once a week. I am now up to walking three or more times a week, and still doing Tabo at least once a week. My husband has also joined me with the walking. I can't wait until Tuesday to see if he will join me with Taebo. I feel so much better knowing that I am building my strength.
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Glad this is working out for you, lupie, I have been saying that I needed to do this too, so you will be my inspiration! Keep it up! *M
Well, I am just very frustrated right now. It seems that everyday something new happens to me. I am now experiencing pain behind my eyes. It feels like I haven't slept in three days. I have been off from work for the past two days and I have slept very well. It doesn't seem to help. I also find myself now trying to make excuses for my symptoms. I just really can't wait to see the neurologist on September 11. It is also getting harder for me to read clearly. I just turned 34 in July, and I feel like I am 60. It is just so confusing, because I seem to deal with things so well. I have had severe headaches since 1995, and I never complain about it. I just kind of keep everything to myself, but these symptoms that I have been having lately are really bothering me and I want to complain dammit!!! I just feel so frustrated and I don't want to bother anyone. My husband seems to be in denial of the whole thing, so it's hard to talk to him. I just wish that I could scream so that the whole world would hear me... AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAHHHHHHHH!!!!
Well, I don't think anyone heard that but it felt good. Thanks to everyone here for listening. Iam just so glad to be able to vent like this!!!
Love and Hugs to everyone and God Bless!!!
Laura
Past Entries
| April 2008 |
Monday, 4/14
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Sounds very frustrating. This problem is over my head. I was quickly diagnosed so I never went through the frustration. Other's have and I'm sure they will offer their advice experience.
I would just get my MRI's on CD & the report to see what they are talking about.
I think places like Mayo does a comprehensive review of the symptoms with many different specialties & the order the test needed on the spot. May be an evaluation that last's for a few days. heard about it, no experience with it. I guess a person leaves with a diagnosis.
nnyl1
I feel your frustration. I went through basically the same thing 17 years ago. Most neuros have the personality of a fish. It took me 2 years before a doc would have guts enough to say yes you have MS. If you have a MS center near you or there is a doctor in your area that does nothing but MS go there. I don't have much faith in the MS society, bad experiance. There is another group MSAA. You can just type that in and it's full of info. they even give you equipment for free if you have a need. Good luck God BLess kel
Kel26
I can understand your frustration at the lack of dx. Some time it is very difficult to get an answer from the neurologist. Istill find that the neurologist thinks it may be something else as well as ms. All you can do is take all your medical details & keep searching till you get some answer.
AusSue