AxleF's Journal

Well, we have been going to Maryland for treatment for a month now.  My daughter has only had one day of pain!  Yay!  There has been no escalation of pain like before.  I believe this is working!  This go around (in general) has been rather confusing.  There just seems to be so much to remember.  I have to give her shots Monday, Wednesday, and Friday; I am really having a challenge remembering those.  I already missed one, and so we had to tweak her schedule for an entire week.  UGH.  Lord help me.  I don't know what I would do if the doc hadn't increased my medicine.  It has really made a HUGE difference in my memory.  Don't know how long we will be traveling to Maryland.  I am praying for good travel weather, and to remember everything that I need to remember!