sb57's Journal

Well,

I was really excited in December when the doctor told me I should try going off of the amiodarone.  She said I was taking such a low dose that I really couldn't go much lower.  I really thought this was it.  I really thought I was going to be able to go without it, but OH NO!  The drug stays in your system for 6 weeks after you stop taking it.  I stopped on December 18th.  Guess what?  About the 1st of February I could feel the difference.  I can feel the irregular heart beats, I am more tired, I have tingling in my left arm, and slight chest pain... I am soooo mad about this.   I want to feel well without the amiodarone.  I don't want to say "quality of life with the medication" I just want to live a long time and meet my grandchildren someday.  I want to drink my husband's whiskey that he said we could drink after his funeral(not that I want him to die). It is just that ever since I have had the heart disease he has lived his life as though I am going to die first and I like to tease him about it.  My kids laugh about how I call him out on it sometimes.

I guess I will call my cardiologist about this next week.  I won't let it go a month or two like I did last time.  You know I increased the dosage of my metropolol 50 mg up to 150 mg.  I think my cardiologist thought that would make up for the amiodarone, but it hasn't. 

I just don't want to be really sick before I die.  I don't want to have eye problems or lung problems or whatever from the side effects of amiodarone. 

I am really ranting.......But it just makes me sooooo mad.   I really don't want to be sick.  I am only 51 years old.  I want to work full time, go for long, brisk walks, hike, get a sun tan( I can't even get in the sun with amiodarone because my skin will turn BLUE permanently) 

Well, May be my cardiologist will have some words of wisdom and I won't need to go back on the amiodarone, but I do feel better when I take it.  I guess I will just need to wait and see.