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sb57 
6:17pm, September 10, 2009
As some of you might know, I love and brag about my children. Well, I have been anticipating my daughter's graduation from UNC-Chapel Hill. Yesterday, the day before we were supposed to leave to attend her graduation celebration, I received an email from her. She explained how she was not going to graduate and for the last 4 years she has been living a lie. In 2005, she lost her academic eligiblity. She has tried to take some classes, but has dropped them. I know she has credit from her 1st semester and she showed us another class where she made a B. Other than that she has no credit. She has gotten married in the meantime to a wonderful, smart young man who is in graduate school. He is working on his Phd. She has hid all of this from him as well.
Megan, was salutitorian in her high school class. She was very motivated and it was an honor to be accepted to UNC chapel hill especially as an out of state student. She did have the hard first year, but we got her some psychological help and I thought she was on the right track. We let her handle her money for the most part. When she decided to get married we gave her the remaining money we had saved for her college. We told her to pay for the wedding and save enough to finish school. I guess all of that money is gone. She was soooo convincing. I can't believe this has happened. It just seems so bizarre--like something you see in a TV show.
Comments
Well,
I was really excited in December when the doctor told me I should try going off of the amiodarone. She said I was taking such a low dose that I really couldn't go much lower. I really thought this was it. I really thought I was going to be able to go without it, but OH NO! The drug stays in your system for 6 weeks after you stop taking it. I stopped on December 18th. Guess what? About the 1st of February I could feel the difference. I can feel the irregular heart beats, I am more tired, I have tingling in my left arm, and slight chest pain... I am soooo mad about this. I want to feel well without the amiodarone. I don't want to say "quality of life with the medication" I just want to live a long time and meet my grandchildren someday. I want to drink my husband's whiskey that he said we could drink after his funeral(not that I want him to die). It is just that ever since I have had the heart disease he has lived his life as though I am going to die first and I like to tease him about it. My kids laugh about how I call him out on it sometimes.
I guess I will call my cardiologist about this next week. I won't let it go a month or two like I did last time. You know I increased the dosage of my metropolol 50 mg up to 150 mg. I think my cardiologist thought that would make up for the amiodarone, but it hasn't.
I just don't want to be really sick before I die. I don't want to have eye problems or lung problems or whatever from the side effects of amiodarone.
I am really ranting.......But it just makes me sooooo mad. I really don't want to be sick. I am only 51 years old. I want to work full time, go for long, brisk walks, hike, get a sun tan( I can't even get in the sun with amiodarone because my skin will turn BLUE permanently)
Well, May be my cardiologist will have some words of wisdom and I won't need to go back on the amiodarone, but I do feel better when I take it. I guess I will just need to wait and see.
Comments
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Hi:
It's Michelle here--I am sorry to see you so upset. Maybe I can help. I was on amiodarone - I took six pills a day. 2 in the morning--2 midday and 2 at night--But then, I had an ICD installed in October of 2007--
My electrical specialist said, it was an ICD or death---
I also had a 4 hour cardiac ablation--that did not stop the PVCs- etc.
Do you have an ICD? I still have PVCs, Ventricular Tachycardia and last summer I had 58 hits of AFIB. The ICD has a pacemaker and a DEFIB as well.
Is this something they would consider to protect you from all of this irregularity...
what do you mean you turn blue---my skin blistered in the sun--but it did not turn blue
HUGS
Michelle
Michelle
Well, I had my 6 month check up at my cardiologist yesterday. It went really well. She took me off of the amiodarone. I tried this once before and had to go back on it after a couple of months. She is increasing my beta blocker 25 mg this months and 25 mg more next month if I can tolerate it to replace the amiodarone and keep the palpatations from returning. Keep your fingers crossed for me. I really would like to get off of the amiodarone. If I have to go back taking it, it will probably get me before the heart condition.
Comments
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hi sb57! i have been taking amiodarone since 2000 and was told i would have to take it forever. i'm curious, why don't you like it? i am aware of it's dangers, but my doctors have always insisted i take it. if i had a choice, i would avoid it. did you have a bad reaction?
don
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I have not had a bad reaction. I just know about the adverse side effects and they are very dangerous. It just seems to me the longer you take it the more likely a serious complication could occur. It is very possible that I may need to go back on it after it gets out of my system in 6 weeks, but I am willing to try getting off of it again. I asked my doctor if I could reduce the dosage to every other day and she said lets try to get off of it all together. I really trust her. She is a top notch heart specialist in the heart failure clinic at Emory University in Atlanta. She is increasing my beta blocker which she thinks I can tolerate now(I couldn't before but now my blood pressure is not so low) This may be enough to keep down the palpatations. It is worth a try. I am sure you understand the side effects of amiodarone which include lung problems, liver problems, eye problems, thyroid problems, skin, and more.
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hey SB57, is it ok for you to stop taking this medication and will ur heart be ok?Whats beta blocker?I hope all is well with you and ur ok!!Are you ok to stop taking this medication?Is it like comindon or storids that you have to be lean off or just stop taking it today?I hope all is well and ur all good.ttys
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Goal Updated
What has she been doing? How has she fooled her husband too & why? I just can't imagine what she did all day & why she felt the need to lie. She must have been afraid to disappoint any one. I'm sorry she felt she had to do that.
ca0711
Shelly, I am so sorry...It does sound like something you would see on TV. I am going to make a suggestion - take it or throw it out. Ask her is she is willing to go to counseling again. If she is, don't give her the money, have the therapist send you the bill. She obviously has some severe self-esteem issues as well as something else is going on. I agree with Royce, she was terribly afraid of disappointing you and her husband. They are going to need help too, as a huge trust issue has emerged. I have been through a similar situation with my oldest son. We paid for 3 different colleges and he has NO credits to his name. Lies in order not to disappoint. Now at 26 he's going back again, but I will not pay this time. Hopefully with the money coming out of his own pocket he will do the right thing, if not, he has to take responsiblity for himself. Please don't be so hard on yourself, it's her responsibilty not yours. It's okay to be disappointed in her lies, but you did nothing wrong. We love our children and want to believe in the best of them. My prayers are with you and your husband, and of course your daughter.
hugs,
Dee
Slowmoving