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About Me
keepingon
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About Me
I am a medical lab technician who was first diagnosed 21 years ago after my 6th child was born. I have continually worked at finding new ways to treat my symptoms as they have come up over the years. I have been blessed in the past with a support group where I lived, but when we moved 14 years ago , I found myself feeling isolated in my condition, and unable to explain to others why sometimes I seemed fine, and other times was very ill. . I have continued in my career till just 4 year ago when I went to occasional status because I felt I was no longer up to the long days .
I am a medical lab technician who was first diagnosed 21 years ago after my 6th child was born. I have continually worked at finding new ways to treat my symptoms as they have come up over the years. I have been blessed in the past with a support group where I lived, but when we moved 14 years ago , I found myself feeling isolated in my condition, and unable to explain to others why sometimes I seemed fine, and other times was very ill. . I have continued in my career till just 4 year ago when I
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Interests
Our farm, horse rescue operation, Jr High and High school Equestrian Teams, cats, prayer and bible study, computers, crocheting, sewing crafts, loving my 5 adult kids, and my grandkids, oh yes and my hard working loving husband of 36 years. This is our third year of empty nest- not as bad as I thought! I also Read to keep my mind away from how I feel. It has always been my constant...can't sleep without a good book, I highly recommend that everyone stay in the middle of a good story!
Our farm, horse rescue operation, Jr High and High school Equestrian Teams, cats, prayer and bible study,
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Journal
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Hugbook
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Thank you for your prayers and encouragement, love. They keep me going - truly - on days like these. I think my pain IS contributing to my lack of sleep. Tricare has yet to get me assigned to a physician here so Idk how long my pain meds are going to last. I rly think that the patches need to be upped in strength, but Idk what to do about it, really.
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Hi Nan, stopping by in your page to say hello..I hope everything goes well with you.....take care always..lups
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Cool, thanks.
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Hug
Come on out to California, head down to Baja and commune with the Blue Whales and their calves. Let us know when you're coming and we'll all get together for lunch. Wouldn't that be fun?
Chocolate
ABC's of a Friend
Friend....
(A)ccepts you as you are
(B)elieves in "you"
(C)alls you just to say "HI"
(D)oesn't give up on you
(E)nvisions the whole of you (even the unfinished parts)
(F)orgives your mistakes
(G)ives unconditionally
(H)elps you
(I)nvites you over
(J)ust "be" with you
(K)eeps you close at heart
(L)oves you for who you are
(M)akes a difference in your life
(N)ever Judges
(O)ffers support
(P)icks you up
(Q)uiets your fears
(R)aises your spirits
(S)ays nice things about you
(T)ells you the truth when you need to hear it
(U)nderstands you
(V)alues you
(W)alks beside you
(X)-plains thing you don't understand
(Y)ells when you won't listen and
(Z)aps you back to reality.
Love Ya,
Niecy
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Photos
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Support Groups
Close Lupus
_I started with a diagnosis of Fibromyalgia, then depression , sleep disorder, ostearthritis, diabetes, hypertension, strange antibodies, bleeding disorder, finally they called it Lupus, and cross over syndrome? Don't know what's next?
Treatments
Close Fibromyalgia
My first diagnosis was Fibromyalgia, way before osteo arthritis, Lupus, Diabetes, high blood pressure, ect... I just keep looking for a better solution than the one before and gradually over 20 years have come to grips with some of these problems, that are all interrelated.
Treatments
- Cyclobenzaprine Working / Worked
- taken at night to sleep more pain free
- Cymbalta Working / Worked
- Only on my third week but it seems to be helping with the pain.
- Heat Working / Worked
- I use the disposable heat patches when going on long walking trip, football games ect.
- TENS Working / Worked
- This is the best item in my arsenal for fighting pain in specific places
- Vitamin B12 Working / Worked
- Taken sublingually along with my other vitamins
Open Ehlers-Danlos Syndrome
I have had EDS my whole life, but was not diagnosed till 2 days ago. I have been trying to go to geneticist since January and will finally go in July.
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Groups
