myotonic dystrophy
March 26, 2009 6:23pm
Hi, I was just diagnosed with myotonic dystrophy type 2 and I am scared, what is in store for me. I had cataract surgery years ago and have …
Monnie45
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About Me
Monnie45
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About Me
I am a dental hygienist and was diagnosed with Meniere's Disease. I am divorced with three grown daughters.
I am a dental hygienist and was diagnosed with Meniere's Disease. I am divorced with three grown daughters.
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Interests
I love taking day trips and getting together with friends and I enjoy a good movie.
I love taking day trips and getting together with friends and I enjoy a good movie.
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Recent Activity
November 15
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Monnie45 wrote a discussion post in the Meniere's Disease support group: unstableness 9:46am
Hi, I was diagnosed with Meniere's Disease a couple of years ago. Before being diagnosed I was complaining…
June 4
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Monnie45 turned 64 12:00am
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Journal
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Hugbook
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Prayer
I'm thinking of you and praying everything goes well. I think the head down position is only when they inject gas bubbles. Is that the procedure in your case?
Hug
hi monnie45 glad to have you here. I realy hope to be friends. We are in the incontinence group together if you have any advice i could use some. but nice to meet you and hang in there jim
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Hug
hang in there... it does get better...
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I also have have urinary incontinence and also suffering with rectal incontinence
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Photos
Monnie45 hasn’t uploaded any photos yet
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Support Groups
Close Dizziness & Vertigo
I have been suffering with Meniere's for about 7 months although I believe I have episodes before. Although the room does not turn I feel like I am on a boat and unstable when walking and making quick turns. I feel so fragile and uncomfortable.
Close Meniere's Disease
Hi, I was diagnosed with Meniere's Disease about 6 months ago. I was put on a diuretic and some ear vitimans and told to start a low salt diet. I am feeling better but not great. I have good and bad days. I feel like I am on a boat and when I walk unstable. I cannot make quick turns without feeling very uncomfortable. Life is not as much fun as it used to be.
Treatments
- Low Salt Diet Working / Worked
- I am only on a diuretic and low salt diet and something called Ear Vite. I don't know if it is working. I am still suffering.
Open Retinal Detachment
Hi, I have an epiretinal membrane and although at this point my vision has not been affected enough for surgery I may at some point need it. I am frightened of the surgery and complications. Has anyone had this surgery and can you tell me a bit about it and any possible complications.
Open Muscular Dystrophies
Type: Congenital MDHi, my CPK was ellevated and I have been going through a series of tests. I have had and MRI and also an EMG both of which were negative. I will be having a muscle biopsy. The suspected diagnosis is metobolic myopothy. My brother is also being treated for high CPK and my father had muscle weakness.
Open Urinary Incontinence
Hi, I have both urinary incontinence and also rectal incontinence. I have had surgery for both, neither worked. The urinary doesn't bother me as much as the other. It is also something I don't like to talk about.
Open High Cholesterol
Hi, I have high cholesterol. I was taken off statins because my CPK was high indication muscle inflammation. I was put on Zetia but taken off becasue there have been controindications and now my doctor wants me to go on Welchol. Well, honestly, it is terribly expensive and pulling from savings to survive as it is and cannot afford it. I have drug coverage but only up to 500 per year, not very much. Anybody else have suggestions.
