21
October 13, 2008 11:58am
Well, Dom turns 21 this weekend! He has managed to stay awake for the first time for a whole day of lectures ( with the aid of provigil ) although he …
Annie50
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About Me
Annie50
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About Me
I am a mum to my two sons and I also have two step children and three ( soon to be four) step grandsons, so life is never dull. I work as a Physiotherapy Technician in the local mental Health Hospital on the acute adult ward promoting exercise. This helps me to keep fit too, as my days are filled with circuit training, swimming, rambling etc. I have joined this support group as my son has Narcolepsy, and this is all very new to us. We have lots to learn.
I am a mum to my two sons and I also have two step children and three ( soon to be four) step grandsons, so life is never dull. I work as a Physiotherapy Technician in the local mental Health Hospital on the acute adult ward promoting exercise. This helps me to keep fit too, as my days are filled with circuit training, swimming, rambling etc. I have joined this support group as my son has Narcolepsy, and this is all very new to us. We have lots to learn.
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Interests
The family take up lots of time, but I do try to go to the gym 3 times a week.
The family take up lots of time, but I do try to go to the gym 3 times a week.
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Recent Activity
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Journal
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Back to Uni
September 18, 2008 2:13pm
Well, Dom is safely back to Uni, to commence his second year. well done Dom!
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Resits
August 9, 2008 2:05pm
Dom doing his Uni resits this week, so keep your fingers crossed for him. After such a bad year with his N&C he unfortunately failed four of his …
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Journal Entry for May 6, 2008
May 6, 2008 5:53pm
Dom having excellent week. His depression has lifted thank goodness, and he is back in good spirits. The provigil is working as is the clonazepam, so …
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Hugbook
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Hi ANNIE, been a long time, great news about your son, it`ll give him an edge dealing with disabilities across the board and without realising it helps come to terms with being disabled oneself, which can be a dilema and struggle in itself. Hope you r happy and healthy, would have thought so in that SW air, love Sommerset, especially Watchit and Nettlecombe Court area. Best wishes ASHxxx
Ray of Sunshine
random hug, just in case it's needed xx
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Big "HUG"
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I just wanted to stop by and leave a few words. I have been gone for awhile because of health problems but it is so good to be back. May the Lord's blessings be upon you....Chaplain Turner
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Superhero Status
Hi Annie, just lettin` yer know you are`nt alone out there, and are doing a selfless terrific job being in the trenches as it were with us struggling NARCS. Hope you feel better about things, I`m sure you know it, but you are a "super hero" for the work and caring you do, but you still need some TLC and to get away from it all. R&R to refresh your batteries, best wishes love ASHLEYXXX
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Photos
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Support Groups
Close Narcolepsy
My son was diagnosed with N&C in March 2008. He had suffered with terrible halucinations on a daily basis for a year.He also suffers with EDS and cataplexy, Consequently he missed a large number of his uni lectures through sleeping and being generally unwell and depressed. This unfortunately meant that he failed several of his exams and is currently doing his resits. Give him his due, since being on his meds he has got back to study and is doing his utmost to try and pass his first year.
Treatments
- Provigil Working / Worked
- Manages to stay awake for most lectures now.
- Clonazepam Working / Worked
- Has minimized halucinations dramatically except when really stressed
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Groups
