grampam

Open Polio

I am the wife/caregiver of a precious 63 year old husband who has post polio syndrome. He had polio in the 1952 epidemic, was 7 years old, and was in the hospital for over year, not expected to survive. We have been together over 18 years, married for almost 16. We have shared harley rides, mountain climbs, 4 children, 15 grandchildren, we now share PT, breathing machines, leg braces, and being parents again to one of our grands. We care for each other and try to stay close in spite of the pain.

Open Guillain-Barre Syndrome (GBS)

my oldest daughter, now 34 years old, came down with GBS when she was 4 years old. after her first spinal tap, they told me she would either get better or die. well, we brought her to atlanta to egeleston at emory. she had hourly PT to try and prevent muscle damage. i am happy to say that she just had twins , has a wonderful 18 year old daughter, a great husband. she owns her own grooming business & trains, breeds & sells show dobermans. she still has phantom pain in her legs. but she's alive!

Treatments

Supportive Care Working / Worked

She had continuous physical therapy. he attack was in 1977. many people had recently been given the swine flu shot. many became crippled or died from GBS. her after effects are phantom pain in her legs and flat, flat , feet. she has to wear RX foot insoles