ormosen's Journal

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Sunday, July 27, 2008 | A Venting story

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1. 

   if you are not here to help get the fuck off my profile

   
   

   ormosen

2. 

   I have never heard of this before. So, I would recomment talking to a doctor, just a regular pediatritian as far as the SIDS diagnosis. My son passed in sept. and after the autopsy found out it was not SIDS. It was the hospitals fault. But SIDS, the only scientific finding they have, medically speaking, is that it is a neurological defect. The brain just shuts off, dies. Everything else is statistics, no proof. I know this because before I found out what happened to my Jakob, I had my dad ask some docs at the hospital he works at. Specialists, and one who just finished research on a specific SIDS case. Not to be rude, but I dont believe it was SIDS, for that reason. He is still here, praise God, and any near SIDS cases I have read about the children have a lot of problems, brain damage..and they call it near SIDS because they can not diagnose what caused it. Has he had any problems since the episode?

   
   

   Jakobsmommyalways

3. 

   I wish I had the name of a specialist for you. I am so sorry for what you are going through. We lost my mother in-law five years ago the same kind of situation and she was brought back to us. She spent 6 months in acoma and has not been the same since.
   
   I apologize for the way people in SIDS Group came across I think people just get a little to sore about things. Alot of it comes from guilt. If they are to accept Near-SIDS as a real incidence then they will turn that into guilt as to why they couldnt get the there babies fast enough. It's not personal in anyway. I lost my little girl to SIDS in June of 2007, and I know the one thing I had to accept was that there was nothing I could do, for some people accepting NEAR-SIDS is hendering them accepting their child could not be saved.
   
   I know what you are going through I am so sorry, I know once you loose someone that way they are not the same person when they come back. If you find any information on a specialist will you let me know, just for my reference. We've gotten several opinions on my mother in laws case and haven't heard anything different either.
   
   I hope all is well.

   
   

   Kairismom

4. 

   God Blees you hun I hope and pray you find a great Dr to help you through. I would start with a well know pediatrician who can help diagnosis all the problems your son now has. Once the medical conditions he suffers from are determined you can do research on Dr's available. Cesar Sinai, St Judes many Childrens facilities with specialist Dr. I have a wonderful friend who's son was born just after our Kairi last year. He survived open heart surgery and get's beeter every day. Catherine has a great blog that she has kept and I know she has done alot of reseach on sepeciality Dr to meet PeterBears needs. I will share he gink. God Bless you hun. Focus on those of us that want to help you through your grief and forget those who do not feel you belong. We all grieve differently and I'm sad for you. Talk any time I'm a good listener. I have a lot of Faith and believe no matter who you are or where you have been we are all Gods children and we need each other. Kairi's Grandma Terri

   
   

   Angels4unme

5. 

   http://krausebears.blogspot.com/20...
   
   What an amazing little man. You have to see his green mohawk from when he had his heart surgery.... God Bless

   
   

   Angels4unme

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