Myasthenia Gravis
November 14, 2009 10:57am
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DaynaMC
12:00pm, September 23, 2008
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About Me
DaynaMC
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About Me
I have been sick with cfids for like 9 yrs.....somehow I forget how long exactly it's been. I have 4 children and i am divorced. Takes a bit of work and the stress level could be lower, but how with kids, a house and ex's. That's what i tell the dr's everytime they tell me i need to lower it! lol
I have been sick with cfids for like 9 yrs.....somehow I forget how long exactly it's been. I have 4 children and i am divorced. Takes a bit of work and the stress level could be lower, but how with kids, a house and ex's. That's what i tell the dr's everytime they tell me i need to lower it! lol
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Interests
Whatever I am up to doing on any given day! lol There are alot of things I love doing. jUst ask.
Whatever I am up to doing on any given day! lol There are alot of things I love doing. jUst ask.
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Journal
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Lonely
October 28, 2009 9:53am
I am feeling lonely like so many other on here. No, no one other than those of us with this illness does understand and truthfully most don't …
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Ugh
May 11, 2009 12:05pm
So Iam almost a week back on antidepressants, and feeling mentally much better. I gave it a shot for 4mths, but when i was waking up everyday just …
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ARghhhhhhhhhhhhhhh!
April 21, 2009 11:06am
I am just so frustrated right now! I threw out the Essiac tea cause everytime i drink it i have a fever for like 24hrs or more! Am i just crazy!? So …
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Waiting for the good to come
April 2, 2009 9:58am
K so I got off the meds and now Iam waitin on the good to come! Where's the fantastic feeling fo wonderful!? oK maybe Iam weird..............I …
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Hugbook
Flower
thanks for the hug
Hug
I am sorry I haven't been on line. Had some problems with my son. Had to take him to the Hospital .
Prayer
I know nothing about this drug..I haven't done the prescription route with my chronic fatigue syndrome...but you might go down to your local health food store and ask them about Bach flower remedies...they help ease symptoms of withdrawal and there are many to choose from. Also, while you're at it...you might want to pick up a book about meditation...I use meditation for most of my symptoms and I have found that it changes my emotional responses to my symptoms...which in turn, helps me to create a fertile healing inner environment for myself...try it! I will be praying for you...hang in there! Christi
Hug
Sending this hug to you and let you know I'm thinking of you.I think the warm weather will help us feel a little better. Your friend,Dottie
Hug
If the roses are wilted, and the violets are blue, and if sugar is sweet, but it is bad for you, then I will give nether, of these items to you, and instead offer a HUG, to say I care about you. A sincere Valentines Day wish to you and everyone... HUGS!
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Photos
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Support Groups
Close Chronic Fatigue Syndrome
Have had this illness for 7 yrs, maybe more i no longer recall. I am a single mother of 4. I used to own my own landscape company and was a bodybuilder for 10.5 yrs. I miss my life, and i feel like if I let that go in my mind, I will die.
Treatments
- Ambien Working / Worked
- It worked for sleep, but it did land me in the hospital for accidental overdose.......which I do not recall anything about that. Not cool at all! So I no longer take it unless I have someone watching me.
- Klonopin Not Working
- Made me anxious
- Neurontin Somewhat Helpful
- Helps me take less of the pain meds. As long as I remember if i took it and don't take it twice! I am now off it and withdrawal almost killed me! It quit qorking so I tapered off and the withdrawal is hell on earth.
- Pain Management Clinic Somewhat Helpful
- Massage & Chiropractor
- Provigil Not Working
- Made me paranoid and anxiuos. Felt like i was losing my mind. hOrrid drug!
- Reflexology Somewhat Helpful
- Did help with the pain, but i can no longer afford it.
- Seroquel Not Working
- worked sometimes. The side effects are too scareyt o make this drug worth trying.
- Tattoos Working / Worked
- I think it helps divert my usual pain. I also have 11 piercings. Mine r spiritual. If nothing else it gives me some personality while i am ill. lol
- Tramadol Working / Worked
- Only thing so far that really works mostly on my pain.
- Wellbutrin Somewhat Helpful
- Seems to be helping with mood. quit working after awhile and i gained weight.
- Writing Somewhat Helpful
- Just to be able to vent or talk like you actually are talking to a friend or family member who is caring helps alot. Since i have noone.
- Zoloft Somewhat Helpful
- Worked for awhile, but damn after 8 yrs taking it it was time to get off meds and tryt o get well. Withdrawal did happen when tapering off.
- Prayer Working / Worked
- when all else fails prayer always can calm me enuf to get thru atleast for the min. I may to keep praying to get thru the next mins, but eventually it passes!
- Meditation Working / Worked
- Reading Somewhat Helpful
- when u can remember what u read! lol
- Pets Somewhat Helpful
- Too much work when u have no help. Adds more stress alot of the time. Helpful part of the time.
- Leave Somewhat Helpful
- my kids are too much stress at times, and getting out away from them is hard, but helpful most of the time when I make myself go out.
- Ativan Considering
- when the stress /panic gets to me i have taken it. I am no seeing much improvement from it tho.
- Forgiveness Working / Worked
- Helps me quit holding on to a negative which drains me more.
- Trazodone Not Working
- never has helped in any way.
- Art Working / Worked
- Keeping Busy Working / Worked
- Ibuprofen Somewhat Helpful
- Chiropractic Adjustment Somewhat Helpful
- Getting Angry Considering
- wears me out even more. I find that when i do finally explode it helps mentally in some ways, but phsyically i become more exhausted. Having help would be more helpful I believe! lol
- Sleep Somewhat Helpful
- When Iam not woekup sleep is very helpful. Lack of sleep is kicking my butt on emotionally being able to handle things and people.
- DailyStrength Working / Worked
- Stretching Somewhat Helpful
- Relaxation Somewhat Helpful
- Poetry Somewhat Helpful
- Acupressure Somewhat Helpful
- Positive Reinforcement Somewhat Helpful
- Bedrest Considering
- somedays I have no choice, but it doesn't help my mental state which in return doesn't help my physical. It's complicated, but nessasary.
- Walking Somewhat Helpful
- Caffeine Not Working
- I need to get over my coffee addiction, it only seems to make me more uptight anymore.
- Acceptance Working / Worked
- Self-help Somewhat Helpful
- I am the only one who can heal me.................this is what i believe anymore.
- Research Somewhat Helpful
- St. John\'s Wort Not Working
- bad reaction to it
- Counting Sheep Not Working
- Distancing Working / Worked
- Guaifenesin Not Working
- Milk Thistle Too Soon to Tell
- Progesterone Cream Considering
- Mirapex Not Working
- Valerian Somewhat Helpful
- for relaxation
- Laughter Working / Worked
- Acidophilus Not Working
- Phototherapy Somewhat Helpful
- Peppermint Not Working
- Self-esteem Somewhat Helpful
- Independent Living Skills Working / Worked
- Evening Primrose Oil Not Working
- Iam allergeic
- Oral Contraceptives Not Working
- Benadryl Somewhat Helpful
- at times for sleep
- Melatonin Somewhat Helpful
- Guided Imagery Somewhat Helpful
- Calcium Considering
- Vitex Too Soon to Tell
- Music Therapy Somewhat Helpful
- Drinking Water Somewhat Helpful
- Vision Therapy Somewhat Helpful
- Vitamin D Somewhat Helpful
- Vitamin C Not Working
- Aromatherapy Somewhat Helpful
- B-Complex Vitamins Not Working
- Flax Not Working
- Stress Management Working / Worked
- Green Tea Somewhat Helpful
Close Chronic Pain
I have ME/CFS I live with pain most days. Sometimes I have migraines for days. I have fatigue constantly. A good day is when I can go for a walk and clean the house or do some yardwork. Getting out of the house for fun is a great day........doesn't happen very often anymore tho.:(
Treatments
- Acupressure Working / Worked
- When I can afford to go.
- Chiropractic Adjustment Somewhat Helpful
- Heat Not Working
- Makes my pain worse
- Hydrocodone Somewhat Helpful
- Makes me sick.
- Lidoderm Not Working
- Marijuana Somewhat Helpful
- Butonly for like 20mins
- Meditation Somewhat Helpful
- Helps alot
- Naproxen Somewhat Helpful
- Helps some
- Oxycodone Not Working
- Physical Therapy Somewhat Helpful
- Helped alot in lossingup my muscles in my neck and shoulders. Can only go til ins says I can tho:(
- TENS Somewhat Helpful
- Tramadol Somewhat Helpful
- Writing Somewhat Helpful
- Neurontin Somewhat Helpful
- Quit working and tapering off I had withdrawal that almost killed me> Warning!
- Tattoos Working / Worked
- Reading Working / Worked
- Pets Working / Worked
- Art Working / Worked
- Ibuprofen Somewhat Helpful
- Sleep Somewhat Helpful
- DailyStrength Working / Worked
- Stretching Somewhat Helpful
- Relaxation Somewhat Helpful
- Poetry Somewhat Helpful
- Positive Reinforcement Somewhat Helpful
- Walking Somewhat Helpful
- Acceptance Working / Worked
- Self-help Somewhat Helpful
- Research Somewhat Helpful
- Milk Thistle Too Soon to Tell
- Valerian Somewhat Helpful
- Phototherapy Somewhat Helpful
- Peppermint Not Working
- Self-esteem Somewhat Helpful
- Independent Living Skills Working / Worked
- Ice Pack Somewhat Helpful
- Evening Primrose Oil Not Working
- Oral Contraceptives Not Working
- Melatonin Not Working
- Guided Imagery Somewhat Helpful
- Calcium Somewhat Helpful
- Vitex Too Soon to Tell
- Music Therapy Somewhat Helpful
- Drinking Water Somewhat Helpful
- Vision Therapy Somewhat Helpful
- Vitamin D Somewhat Helpful
- Skelaxin Somewhat Helpful
- Aromatherapy Somewhat Helpful
- B-Complex Vitamins Not Working
- Stress Management Working / Worked
- Green Tea Somewhat Helpful
Open Irritable Bowel Syndrome (IBS)
I have ME/CFS,IBS.......all the joys that come with them.
Treatments
- Acidophilus Somewhat Helpful
- Aloe Vera Not Working
- Colace Somewhat Helpful
- High Fiber Diet Somewhat Helpful
- Miralax Somewhat Helpful
- Peppermint Somewhat Helpful
- Probiotics Not Working
- Writing Somewhat Helpful
- DailyStrength Working / Worked
- Acupressure Somewhat Helpful
- Positive Reinforcement Somewhat Helpful
- Walking Somewhat Helpful
- Acceptance Working / Worked
- Self-help Somewhat Helpful
- Research Somewhat Helpful
- Milk Thistle Too Soon to Tell
- Independent Living Skills Working / Worked
- Evening Primrose Oil Not Working
- Oral Contraceptives Not Working
- Vitex Too Soon to Tell
- Vision Therapy Somewhat Helpful
- Vitamin D Somewhat Helpful
- Aromatherapy Somewhat Helpful
- B-Complex Vitamins Not Working
- Flax Somewhat Helpful
- Stress Management Working / Worked
- Green Tea Somewhat Helpful
Open Migraine Headaches
I have cfids with migraines, neck pain, IBS.
Treatments
- Caffeine Somewhat Helpful
- Excedrin Not Working
- Fioricet Not Working
- Imitrex Working / Worked
- Why do they only give u 9 frickin pills a mth tho!?
- Magnesium Not Working
- Naproxen Not Working
- Tylenol Not Working
- Prayer Somewhat Helpful
- Chiropractic Adjustment Somewhat Helpful
- Sleep Somewhat Helpful
- DailyStrength Working / Worked
- Relaxation Somewhat Helpful
- Acupressure Somewhat Helpful
- Positive Reinforcement Somewhat Helpful
- Acceptance Working / Worked
- Self-help Somewhat Helpful
- Research Somewhat Helpful
- Milk Thistle Too Soon to Tell
- Valerian Somewhat Helpful
- Peppermint Not Working
- Self-esteem Somewhat Helpful
- Independent Living Skills Working / Worked
- Ice Pack Somewhat Helpful
- Evening Primrose Oil Not Working
- Oral Contraceptives Somewhat Helpful
- Melatonin Somewhat Helpful
- Guided Imagery Somewhat Helpful
- Calcium Considering
- Vitex Too Soon to Tell
- Drinking Water Somewhat Helpful
- Vision Therapy Somewhat Helpful
- Vitamin D Somewhat Helpful
- Aromatherapy Somewhat Helpful
- B-Complex Vitamins Not Working
- Stress Management Working / Worked
- Green Tea Somewhat Helpful
Open Fibromyalgia
I have cfids, ibs, chronic neck ,shoulder, migraine pain
Treatments
- Acupressure Working / Worked
- But ins. doesnt pay for it
- Effexor Somewhat Helpful
- Guaifenesin Not Working
- Heat Not Working
- Makes it worse.
- Neurontin Somewhat Helpful
- Ultram Somewhat Helpful
- Vitamin B12 Not Working
- DailyStrength Working / Worked
- Acceptance Working / Worked
- Vitex Too Soon to Tell
Open Loneliness
I am a single mother of 4. I do it alone. I have ME/CFIDS/IBS/Pain
Treatments
- Prayer Working / Worked
- Meditation Working / Worked
- Reading Working / Worked
- Pets Somewhat Helpful
- Leave Working / Worked
- Ativan Considering
- Forgiveness Working / Worked
- Art Working / Worked
- Keeping Busy Working / Worked
- Sleep Somewhat Helpful
- DailyStrength Working / Worked
- Stretching Somewhat Helpful
- Relaxation Working / Worked
- Poetry Working / Worked
- Positive Reinforcement Working / Worked
- Walking Working / Worked
- Self-help Working / Worked
- St. John\'s Wort Not Working
- Progesterone Cream Considering
- Laughter Working / Worked
- Phototherapy Working / Worked
- Self-esteem Working / Worked
- Evening Primrose Oil Not Working
- Melatonin Somewhat Helpful
- Guided Imagery Somewhat Helpful
- Vitex Too Soon to Tell
- Music Therapy Somewhat Helpful
- Aromatherapy Somewhat Helpful
- B-Complex Vitamins Not Working
- Stress Management Working / Worked
- Green Tea Somewhat Helpful
Open Restless Legs Syndrome
I don't sleep at times because of this.
Treatments
- Lexapro Not Working
- Not working for restless legs, but does help with other things.
