I am almost 30 and am a singer/songwriter by trade. I am very spiritual. I live by Toltec shamanism (think maya, aztec), but also follow north and south american shamanism and im very interested in all religions. Im a trained Reiki and spiritual healer. I use crystals to help me with my symptoms and would be lost without them. I worked for some years as a special needs assistant working with children who had autism, aspergus, adhd/add, behavioural problems etc. Best job I ever had!
I am almost 30 and am a singer/songwriter by trade. I am very spiritual. I live by Toltec shamanism (think maya, aztec), but also follow north and south american shamanism and im very interested in all religions. Im a trained Reiki and spiritual healer. I use crystals to help me with my symptoms and would be lost without them. I worked for some years as a special needs assistant working with children who had autism, aspergus, adhd/add, behavioural problems etc. Best job I ever had!
Music is a massive part of my life. I love to sing and play my guitar or bass and write songs. I love soul music, motown, jazz, pop, rock, new country, folk, salsa, latin and blues music etc... I love to read and im hooked on Carlos Castaneda, Don Miguil Ruiz, Lynn Andrews, Dan Millman, Paulo Coelho and Stephen King books. I recently took up knitting again and im addicted. Some of the yarns out there are so cool and funky and the patterns are bang up to date.
Music is a massive part of my life. I love to sing and play my guitar or bass and write songs. I love
January 19, 2009 7:38pm
I AM SO TIRED... Im in that place again. All I want to do is hibernate. I mean, who can blame me huh? I live slap bang next to the sea. I can walk …
January 18, 2009 8:46pm
Hello all Its been over 3 months since my last entry. Cant believe it. I had flu from October until mid December. Thats what you get for having to …
October 5, 2008 12:23am
Uuuughhhh. Is it morning already?
No. I need to sleep. It is so ironic that I have chronic fatigue syndrome yet have insomia too! Thats just …
September 28, 2008 10:42pm
Feeling kind of Blah! Im fed up with feeling Blah! I wish I could wake up in the morning and feel wonderfull. Throw back the curtains and let the …
August 12, 2008 10:36pm
Hi
Sorry not been about for ages. I had an attack of the dreaded cfs. Ive been in bed for weeks and im gonna scream if I dont get out soon. To make …
Hi Danielle!
Just wanna say thanks for posting your story. I was diagnosed with VKH about 3 months ago and it's comforting to know that there are others out there. Although having this rare disease does make me feel somewhat special, lol.
Regards,
Lisa :-)
Hello and how are you? Long time no see you on the site. Sending you Happy Easter/Spring wishes and hope things are going 'ok' for you..Hugs, love , RQ
Sorry it took me so long to reply to your yoga post. My computer has been kaput. I did post a response. Blessings
Thanks hun I am going to look into it later. Hope you are well and isnt it windy here today!
Very good to hear from you...No, I haven't seen the jade one..Cimi..I looked on the support group in Hampshire...but did you have me mixed up with someone else? (not that I can't use the support.) anyway, the one we have here has a good website that people seem to like. www.cndsinfo.net It's called the Carousel Network. which I think you should be able to pull up from over there. in the meanwhile ...send you love..
Progress
50 %
Progress
30 %
Ive had CFS for about 14yrs. I had to leave work due to CFS as I was simply no longer able to continue. I was working with kids who had learning difficulties and behavioral problems and was a job I loved. I am mostly housebound and often bedbound when the CFS is bad. I am currently hoping to do Open university and get a degree in criminal psychology. I have a lot of free time so I may as well use it!
I got brain damage due to 6 bouts of non viral meningitis, where the lining of the brain and spinal cord swell up, over a 3 month period. Ive never known pain like it! The doc's believe I also had a bout of encephalitis causing the brain itself to swell. I now have terrible memory problems that im still learning to cope with. I also have no real sense of time. Im always living in the now and that makes planning things tricky. I would love to hear from anyone who can relate to my situation.
My pain stems from a bad fall I took a few years ago on a very wet floor. I was also involved in two car crashes some years back and im sure that hasnt helped matters very much. My partner at the time wouldnt take me to hospital, he was not a good guy (the violent type, and responsible for both crashes) so I just had to nurse myself!
Both of my retinas were detaching due to a rare syndrome I have called VKH, Vogt-Koyanagi-Harada syndrome. I had to have injections in the eyes and then long term steroids to save my sight. I also had to have a form of chemo therapy used for transplant patients to stop my body from rejecting the pigment in my eyes and causing retinal detachment. My sight has now be good for the last few years but I know it could happen again.
Due to a very rare genetic syndrome called VKH I have had meningitis. Part of its characteritics is severe non-viral Meningitis that repeats itself. I had Meningitis 6 times in 3 months. I also had an attack of encephalitis. The pain was horrific. Im aware that it could hit me again at any time. I ended up with brain damage as a result which I am still trying to cope with.
I have a friend who I think has a multiple personality disorder. He kows something is wrong but he doesnt talk about it. He talks to himself if he thinks im not around. Sometimes he is gentle and funny and others cruel and hard and doesnt seem to know me very well!
Ive always been a night person out gigging with band & not getting home until silly'0'clock. Since I got ill with CFS sleeping has become some what challenging. I dont usually get to sleep until 4;30-5;00am. Thats on a good night. For some reason its when im at my most creative writing new songs, journaling etc. For someone with CFS it makes no sense. I have a rare syndrome called VKH but insomnia is not a symptom. I am ADD & wonder if that may be a factor? On too many meds to take more!
