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  • About Me

    Image of ExDiva

    ExDiva

    Female, 48
    Shreveport, LA, USA
    Member since February 19, 2008

    • About Me

      Years of traveling, writing, speaking, and stress finally did a number on my body. Not such a great body - alopecia, bipolar, skin disorders probably PTSD induced. But for years no one knew...Now I have to surrender and say, "I'm sick." I moved near family, stopped traveling, and ....now what?

      Years of traveling, writing, speaking, and stress finally did a number on my body. Not such a great body - alopecia, bipolar, skin disorders probably PTSD induced. But for years no one knew...Now I have to surrender and say, "I'm sick." I moved near family, stopped traveling, and ....now what?

  • Recent Activity

    November 14

    November 13

    • ExDiva wrote a journal entry: Journal Entry for November 13, 2009 9:04pm

      Zero vicodin yesterday and only one today. Using valium to relax the muscles. It's working. Than…  
    • ExDiva gave segulley a hug 9:03pm

      I've been using a massager for ten years. I'm adding muscle relaxers too. I'll so whatever it takes.…  
    • ExDiva gave fieldofdaisies a hug 8:59pm

      Your pdoc has computers? I have a GREAT pdoc, but she is mainly a researcher at the med school and they…  
  • Journal

    • Journal Entry for November 14, 2009

      Mood November 14, 2009 10:11am

      ONly one vicodin yesterday.  Keeping my right arm immobile is working.  I will get a trigger point injection for sure.
    • Journal Entry for November 13, 2009

      Mood November 13, 2009 9:04pm

      Zero vicodin yesterday and only one today.  Using valium to relax the muscles.  It's working.

       

      Than and the double dose of …

    • Journal Entry for November 11, 2009

      Mood November 11, 2009 11:55am

      Argued wtih Dr. Yorek again.  Idiot.  I've had a staph infection in my bladder since Sept.  None of the four courses of …

    • Journal Entry for November 5, 2009

      Mood November 5, 2009 12:38pm

      Yesterday was the first day in forever I went a whole day without vicodin.  Now that I'm not traveling I will stay home and not do anything …
    • Journal Entry for October 19, 2009

      Mood October 19, 2009 2:31pm

      yesterdya and the day before were migraine days

       

      10/17 one imitrex three vicodin

      10/18 one imitrex five vicodin

       

      I don't even take 1/2 …

    Read Journal

  • Hugbook

    Give ExDiva a hug



    • Hug

      From fieldofdaisies November 14

      oh ex..haha, i read it wrong thought it was LA..anyway, now i get it, oooh really, it's like that there..i want to live here..here it is so square and i feel like people here are very judgemental and if you don't fit into the round hole then your fkd...it's hard to be accepted around here if you go to the beat of your own drummer....i should live there! i think i'd like it...oh, that's cool your dad is getting better , yah i hear u about the inappropriate touching...but sounds like he's changing..and that's a good thing....my dad tried to in appropiratly touch me when i was im my early 20-'s, and he was very drunk,,but because of my age..i set him straight real quick and pushed him the fk off of me..lol, but anyway,,,,,it's good i wans't younger, thank god....hmmm....you think any getting better is inj the cards for your mom? or is she just stuck where she's at..? who knows right....we can never say never...anyway, big hugs for you diva,,,,it's saturday night and i'm bored as crap here...nothing to do...no car...and no cable..so i'm in for a long night..anyway, i guess i'll just hang out on ds..which is a saving grace for me...:) big huge hugs for you and peace for u sister, love, maggie

    • Hug

      From fieldofdaisies November 13

      hey diva...wow, that is funny about where you go to see your pdoc..lol, i have a friend whose always in trouble with the law, he'd get a kick out of it....he is the sweetest guy with the biggest heart...but he has some drug addictions..and that is what keeps him tied up with the law..i just want to be there for him, cuz he needs someone who beleives in him, and i do..and i want to see him get away from the life he's leading..and have some hope..i know he can do it..he has so much to offer, he's intelligent , and has a big huge heart and he's very funny too..and also, he goes to the beat of his own drummer..he's a kindred spirit, and kindred spirit's are what i try to surround myself with these days...tired of gettting fkd over by some of the "normies", even in my own family...anyway, yah, i will tell her about keeping a diary, that's a good idea..i just worry about her, because i do think she has an addictive personality...my dad is an alcoholic so there is some addictive stuff in my family..and i always use to self-medicate with alcohol until i just recently got on the right meds..

      anyway sister..sounds like your gona have fun on the 30th..and hopefully pain free....i wish you a peaceful and relaxing evening...your in califronia? yah, my little sister lives in the desert..not sure of the town yet, she just moved erhe, but she use to live in Laguna beach..anyway, wish i had some money i'd fly out and see her, and you and i could maybe meeet!!! anyway, maybe one day...big huge hugs for you diva....xoxo, maggie

    • Flower

      From segulley November 12

      Thanks for the hug. You can't believe the size of the trigger points in my lower legs!!! They are like small rocks!! I use a percussion massager to do the trigger point massage which really helps. blessings. jean

    • Hug

      From fieldofdaisies November 12

      hey u, thank you so much for that hug...you have some really good advice...and yah, it's one day at a time..i should learn this from past worries...that never even had to be worries if i had lived in the moment..isn't it funny we get this wisdom...it comes hard sometimes doesn't it? but come it may..and thank god it does finally come, even if it is the hard way..always the hard way for me ex...yah, a brisk walk, your right,,,,much better then a sweaty gym, huh? anyway, yah, your right about the disability....the thing is, if i appeal, and i finally get it..it is something you can stay on and if you want to get off of it you can, also, they allow you to work like 20 hours a week...and that is a good thing....i don't want to just not work at all....i think it's important for us to keep busy, if we are able to work...anyway....good luck dear ex with thinking about those shots...i really hope they can help you...my daughter got in a bad car accident in march, i'm not sure if i already told you about it...anyway, she broke her back, and is still in alot of pain...she lost so so much weight, and there's hardly anything leftf of her, she's so tiny...also, she works at a clothing store, but, it is really hard on her back, so she can't work much...i think she needs a job where she is sitting a little more....or at least not bending up and down and folding clothes all day...on her feet..also, i'm worried about her because she's still on pain meds, she takes concerta for add, and she is on ativan..i'm just worried because of the addictive side of these things...especially the pain meds and the ativan...anyway, she has been through alot in her life with me , because i was sadly unmedicated for so long , and i just don't want her to be getting addicted to the pain meds, also to mask her emotional pain instead of working through it and maybe seeing a counselor or something...anyway, please keep her in your prayres ex...and me 2, and i will also keep you in my prayres...here i am at the pdoc office, waiting to be seen..it's so cool here, the people are so so nice at this clinic and they even have computers for us to use while we are waiting! anyway, this hug must be very very long...lol, anyway dear ex...i am thinking about you and i send wishes for love and peace and all good thing's your way....xoxoxo, maggie

    • Moment of Peace

      From lovewins November 12

      hey thx for the advice but the imitrex never helped me out. how are u feeling?

    Read Hugbook

  • Support Groups

    • Close Fibromyalgia

      Five years searching for a diagnosis - symptoms for eight. My stiff upper lip turned out to be the problem. That - and airplanes, airports, too much work, you know the drill. I sold everything and moved home to live near family. I stopped traveling except once a month (gotta make $), and started taking better care of myself. Symptoms: chronic pain in cycles, migraines, fatigue, occasional intestinal "issues" - being bipolar for years probably didn't help my stress levels.

      Treatments

      Acupuncture Somewhat Helpful
      can't really tell long term - but short term it's magic
      Aqua Therapy Working / Worked
      Yummmmm
      Effexor Working / Worked
      totally changed my life - depression was main issue back then.
      Heat Working / Worked
      Yummmmm
      Hydrocodone Working / Worked
      the one thing that helps me live a normal life. I am wary of addiction but I dont enjoy it that much. Constipation is a unpleasant side effect
      Lamictal Working / Worked
      low dose did wonders for extreme irritability of Bipolar II mixed state
      Vitamin B12 Working / Worked
      one shot so far...I do have more energy
      Progesterone Working / Worked
      didnt have hardly any progesterone. who knew? I feel MUCH less anxiety already
      Valcyte Working / Worked
      MAGIC...or at least I think it is. I had Herpes 1 that spread to my face so the doc assumed it might have spread to my organs. Same as the cold sore virus but when your immune system is compromised it gets scary
      Trazodone Working / Worked
      for sleep don't know yet
    • Close Bipolar Disorder

      I used to think it was just depression. And for years I used therapy to cope. Then it got real bad - suicidal. I started taking effexor. Last year it got bad again and I added lamictal - what I called anxiety was actually a "mixed state" of mania/depression that makes me paranoid, angry, self loathful and completely unpleasant to be with. I'm better with the lamictal. I probably should up the dose (25) but I'm afraid of losing my personality. I like to be spicy - I don't want to be bland

      Treatments

      Lamictal Working / Worked
      Effexor Working / Worked
      works wonders
    • Open Chronic Fatigue Syndrome

      I was okay with the fibromyalgia diagnosis but I really resisted the Chronic Fatigue diagnosis - as if denial has worked before. I sleep 10-14 hours and resent the hell out of it. I used to be an achiever and now I can't. I used to be a planner and now I can't. I exercise 30 minutes a day and sometimes that's all I get done in the day.

      Treatments

      DHEA Working / Worked
      who knows? I'm taking so much else
    • Open Migraine Headaches

      I was diagnosed with Fibromyalgia and CFIDS now I'm thinking chronic migraines may be the root cause. I have "full body" migraines and they can last up to 4 days. This of course leaves me fatigued...and the pain could be migraine instead of fibromyalgia

      Treatments

      Imitrex Working / Worked
      Imitrex is a miracle drug
      Topamax Too Soon to Tell
    • Open Back Pain

      Treatments

      Acupuncture Somewhat Helpful
      Can't find a good practitioner in Louisiana (licensing requires an MD)
      Heat Working / Worked
      love it
      Hydrocodone Working / Worked
      couldn't make it through a day without it
      Physical Therapy Working / Worked
      In the morning before I get out of bed. (when I can make myself)
  • Groups

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