look after my physical health with rest this weekend
November 20, 2008 9:22am
Progress
65 %
stillwell
8:04am, November 13, 2008
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About Me
stillwell
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About Me
I am a wife of almost 30 years to my hubby John who has Prim AL. We have 4 children ages 16 - 29. I run a school office full time and volunteer for our local volleyball club for my daughter's team. I believe in the power of positive thought but find it difficult at times to always be the strong one and in control. Our life has been forever changed by this disease and my dream would be to share one last trip with my husband and to see him become at peace with his life and accomplishments.
I am a wife of almost 30 years to my hubby John who has Prim AL. We have 4 children ages 16 - 29. I run a school office full time and volunteer for our local volleyball club for my daughter's team. I believe in the power of positive thought but find it difficult at times to always be the strong one and in control. Our life has been forever changed by this disease and my dream would be to share one last trip with my husband and to see him become at peace with his life and accomplishments.
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Recent Activity
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Journal
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Snow shoveling, throat infection - tough day ahead!
November 20, 2008 8:23am
Today we have encountered our first snowfall of the season and although the snow has some romantic qualities of days gone by and Christmas coming - …
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November 2008
November 13, 2008 8:02am
well, today is grey, rainy and wet - similar to our life right now! Hubby staying in bed more and more - sleeping more - eating less and now …
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Thankful today for great fall weather and time outside
October 4, 2008 1:47pm
The weather is beautiful but a little cool this October day. This weather is great for gardening and fall cleanup. I love to be outside and …
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Tired and worried
September 12, 2008 1:05pm
Today, I'm feeling alittle anxious. Caregiving is hard, physically demanding and emotionally draining. this week our youngest (16) has asked to …
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Hugbook
Hug
May your day be restful and feel like a Hug. I pray for your strength and Blessings on your family. MaryAnn
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Prayer
I'll keep you and your family in my prayers! Stay strong.
Flower
Sending some pretty fall flowers to let you know that I am thinking of you. Lots of hugs go with the flowers. XOXO pat
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I’m With You
Been there. Done that. Hang in there. You will have some good days that will make up for the rough ones.
Prayer
You and your family are in my prayers! :)
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Photos
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Support Groups
Close Caregivers
I'm a caregiving wife of a husband with amyloidosis. Rare blood disorder - late stages and terminal - it just feels like we are waiting....and going through the motions. He struggles daily both physically and mentally which tires and worries me constantly. It's hard to stay positive with someone who is angry and not interested in finding ways to make the best of the time we have.
Close Amyloidosis
Wife of 30 years to husband with Primary Al and in his last few months? I'm currently a fulltime caregiver at home to keep him from having to go to a nursing home or hospital. Every day is a challenge physically and emotionally. Frustrated with lack of caregiver support and information on this disease and what to expect.
