Journal Entry for February 18, 2008
February 18, 2008 12:45pm
I've felt so good today... so far. Yesterday, I felt like a "normal" person and ran around til 11:30 pm doing things around the …
lonas 
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About Me
lonas
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About Me
Hello all, I've been here awhile but haven't signed in recently. Just had a thymectomy 3 days ago and besides being sore from surgery, my mg seems to be "gone". I am going to continue with my IVIG treatments once a month as well, but I am sooooooo excited about the future right now with my symptoms under control I can hardly contain myself. If any of you need support through a rough patch, hit me up, trust me, I've been there and would be more than willing to be supportive to anyone else.
Hello all, I've been here awhile but haven't signed in recently. Just had a thymectomy 3 days ago and besides being sore from surgery, my mg seems to be "gone". I am going to continue with my IVIG treatments once a month as well, but I am sooooooo excited about the future right now with my symptoms under control I can hardly contain myself. If any of you need support through a rough patch, hit me up, trust me, I've been there and would be more than willing to be supportive to anyone else.
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hello lady..was wondering if ya dropped of the face of the earth LOL..how are you feeling now?? we were back east from may 31-july 12 so im finally getting caught up..oh & yesterday i hit the big 40!!! YIKES!!! not sure i feel about not being in my 30s anymore..well kit..hope to meet ya soon..liana
Flower
How are you feeling? Did this round of IVIG help?
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I’m With You
I hope that you too will find some relief.
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Support Groups
Close Myasthenia Gravis
Treatments
- IVIG Too Soon to Tell
- I think it helps. My symptoms have been bad lately so its hard to tell how much worse theywould be without it.
- Mestinon Somewhat Helpful
- when i first started taking it 2 years ago, it was life changing. Now it seems to work, but not take the symptoms away completely.
- Thymectomy Working / Worked
- just had it done 3 days ago!! No MG symptoms whatsoever!! Just pain from surgery and what looks like will be an ugly scar.
Close Parenting Preschoolers (3-5)
I have a 3 1/2 yr. old boy is my everything!! The past year and 1/2 I've had to go back to work and he is in full time daycare now, something I never wanted to do when I had kids and I'm adjusting to it as well as he is.
Treatments
- Child Time-out Somewhat Helpful
- It depends how far into his "fit" he is.
- Positive Reinforcement Working / Worked
- This is extremely important, he is very proud of himself now when he puts his clothes in the hamper or his dirty dishes in the sink.
