acuounture
October 16, 2009 1:28pm
tried it, will give it one more appt. and then deside.
he didn't want to know anything about me, and made me have pain from working on a differert …
Progress
30 %
jaynemichele
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About Me
jaynemichele
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About Me
i am a retired 54 year old english hunt seat instructor and show jumping horse trainer in northern virginia for most of my life. 2 children now 24 and 26. in 1998, osteo and rhu, arthritis made a c567 neck fusion my only choice for pain relief. it also changed my life forever because i could no longer train or ride horses. moved to idaho when kids graduated from college and in 2006 to build our "dream" house and retire the pain came back {after 10 years} i had C567 redone and C7-T1 fused last jan. i have been fine since oct. then the real bad pain came back. it took 3 drs. to submit all the paper work to get me into the boise pain clinic, and they started me on methadone and i had a cervical epidural. with no relief from both, i am now starting fentanyl patches, just today i moved up to 3 {12mcg/hr}/day i don't know what will work. yesterday (feb. 19) the pain was so bad i could not sleep. the pain clinic drs. told me to put on another patch. so now i am taking 48 mcg/ hour every 72 hours. surgery is not an option for us right now because of money. i feel like i am at the mercy of this pain clinic, and that is not a good place to be.. this is the second time i have tried to add to my profile...i hope it works this time... i wanted to add the part of my surgery here in idaho in jan of 2007. the pain came back very slowly in oct. and then it became bad enough for me to realize that i had a problem. finding a neurosurgeon here was easy, as there was only one excellent one. other wise i would of had to go to Salt Lake or Seattle. WHEN THE DR. FIRST SAW THE XRAYS OF MY NECK HE SAID HE WONDERED WHY I WASN'T PARALYZED. MY HUSBAND AND I WERE FLOORED. I SAID I KNEW IT WAS BAD, BUT NOT THAT BAD. THE SURGERY WAS ONE OF THOSE WHERE THE DR. DOESN'T KNOW HOW IT'S GOING TO GO UNTIL HE GETS IN THERE. THE BEST CASE SCENARIO WOULD BE IF HE COULD FIX EVERYTHING BY GOING IN THROUGH THE FRONT OF MY NECK, THE WORST WOULD BE IF HE HAD TO FLIP ME OVER AND GO IN THROUGH THE BACK OF MY NECK ALSO. HE THOUGHT HE COULD FIX EVERYTHING WITH THE BEST CASE, BUT WHEN I WOKE UP AND LOOKED AT THE CLOCK AND SAW THAT 5 HOURS HAD PASSED, I KNEW I WAS IN FOR A ROUGH RECOVERY, AND THE WORSE CASE SCENARIO HAD JUST HAPPENED i finally could not take anymore pain, and had surgery on may 5 , this year. C567redone, removal of the other drs. hardware, C2C3 fused, and C7 TI fused. another surgery through the front and back. the surgeon found two screws just laying in my neck with no sign of where they were suppose to be. basically, the surgeon i had in jan. 2007, really screwed me up bad. we found out that suing is out of the question, these neurosurgeons do not testify against each other, EVER.. at my 1st post surgery appt. i (with my husband right there) asked him how a human could do what this dr. did to me.... and he.answered, "this isn't the 1st time!" we were floored!! we told him about our search for legal action. we asked what we could do and he said to write a letter to the idaho physicians board, and maybe if enough people write letters, his license will be taken away. that really doesn't make me feel very good....a year and a half of severe pain from a botched surgeon........
i am a retired 54 year old english hunt seat instructor and show jumping horse trainer in northern virginia for most of my life. 2 children now 24 and 26. in 1998, osteo and rhu, arthritis made a c567 neck fusion my only choice for pain relief. it also changed my life forever because i could no longer train or ride horses. moved to idaho when kids graduated from college and in 2006 to build our "dream" house and retire the pain came back {after 10 years} i had C567 redone and C7-T1 fused last jan.
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Interests
i take care of my horses with help from my huband , and knitting is about the only thing i enjoy that doesn't hurt. we also have an african grey parrot that is a real handful and alot of fun. if it weren't for my horses i could not handle any of this. they are so sweet and caring, about time to update. my fusion surgery was on may 5th so it's been 2 1/2 months. i am off the fentanyl patch and have been asking for norco( 6 a day ) since i have started physical therapy only 2 weeks now. i have only had 2 sessions so far. and it has made me have alot of pain in the back of my neck where the surgeon went in, but according to the p. therapist, all that pain is really coming from the front of my neck where the surgeon went in. he explained it all with charts. ugh!!! i have trouble swallowing, and if i put my chin down just a little bit toward my chest, i can't swallow at all. this is normal, i guess, for the type of procedure i have had. the surgeon will not give me any more narcotics after this week, so i must go through the whole "find a pain management dr." again. the advil and soma (a muscle relaxant) doesn't touch the pain anymore. it worked at first, and i did not need any norco for awhile, but the p. therapy is making it really painful. i am at the point where i keep telling myself, "enough is enough!" i find myself crying alot, even though i have been on wellbutrin since the surgery. i find it very hard to go to the p. therapist knowing that the next morning, i'm going to hurt so bad i can barley take care of my morning chores. i am now in virginia in a furnished condo at reston town center. my husband could not get any job in IDAHO, so he got his old job back. our son and his girlfriend have moved into our dream house we built on the payette river, and are taking care of my horses and my husbands elderly Dalmation. i miss everything so much. i am very sad. i now have found a new pain dr. and he put me on LYRICA and i stuck it out for a week but i can't take it. he prescribed it for nerve damage, because he thinks that's why i have so much pain. for a non narcotic drug, LYRICA is reallt strong. i became dizzy, confused, shaky, unable to do just about anything. i now have a call into the pain office to find out how to go off this med. and what to do next. i have not gotten any pain relief what so ever from this LYRICA either., so i'm back to a RX for prescription strength motrin 800 mg. it only lasts 4 to 5 hours, and i can only take it every 8 hours.... i am now trying trigger point injections and the 25mcg/hour/48hours fentanyl patch i will do 1 injection once a week for 6 weeks. i also have physical therapy that hurts alot 3 times a week
i take care of my horses with help from my huband , and knitting is about the only thing i enjoy that
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Journal
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levaquin
August 31, 2009 2:55pm
i have been told by my doctors, that i need a cat scan of left thumb and left shoulder and ten an mri of cervical spine and left shoulder.
i had a …
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daughter
July 15, 2009 9:54am
tomorrow i fly to grand rapids, MI to visit my daughter.
i haven't seen her since chiristmas!
she is an industrial designer for the company …
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2 ND APPT.
June 10, 2009 12:46pm
YESTERDAY APPT. WENT LOSEY.
I HAD TO WAIT AN HOUR WITH SCREAMING KIDS, THEN THE DR. SPENT ALL THE TIME ON THE COMPUTER, ENTERING STUFF THAT HE HAS …
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2ND VISIT
June 9, 2009 8:01am
TODAY WILL BE THE 2 WEEK APPT. SINCE I CHANGED PAIN CLINICS.
I HAD NO CHOICE IN CHANGING, THE LOUDOUN SPINE AND PAIN GROUP DECIDED NOT TO TAKE ON …
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Hugbook
Hug
Thinking of you Jayne and sending lots of gentle hugs your way. Take care... xxx
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Hug
I am so sorry you had that awful experience with the pain med and the stupid pain clinic. Really makes me want to scream... it is all just so unfair. I am watching with great interest what Obama is going to do about the healthcare issue... I am so sick of watching my US friends struggling so much to get what seems like 2nd rate care. The journal I wrote explaining what had happened about dad's will etc was before the one you read... if you go back to that one and then go down the page past the comments that have been left you should find the one before. I hope you can because I don't think I can explain it all again.
Sending hugs and smiles for you... take care... xxx -
Flower
Thank you for your beautiful message... it makes all the difference to know there are people here who care. I feel so blessed you are my friend. I will send you a reply tomorrow... I am just too tired to do it now. I hope you like these beautiful flowers... I picked them just for you. Take care... xxx
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Ray of Sunshine
Wishing you a good weekend filled with sunshine and laughter... and sending lots of love and hugs... take care my friend... xxx
Hug
just thought I would drop in
to say Good Night
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Goals
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Support Groups
Close Chronic Pain
1998 C567 neckfusion osteo and rh arthritis, then pain back 8 years later and i had C567 redone andC7-T1 fused last jan. now pain is back and i finally got into the boise pain clinic. i am stopping methadone and starting fentanyl patches and i am really afraid of the really bad pain coming back. would appriciate any input on fentanly
Close Degenerative Disc Disease
i am also in the chronic pain group. my cervical surgery's are all because of DDDisease. it is horrible having your own body attack itself. i have many questions that i hope all of you can help me with
Open Arthritis
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Open Alzheimer's Disease
Stage: Advancedmy mother who is 84 has AD. my dad who is 87 is fine and takes care of her. they are in a retirement community that follows their health to death. i gave my dad and my husband a vacation for a week to go to our home in idaho while i took care of my mother. i am still crying. it was so awful. i don't know how my dad is doing this and if we are going to help him move on when she needs 24 hour nusing care. it would be a short walk fo him to see her. i have never been treated the way she treated m
Treatments
- Aricept Working / Worked
- i have seen no difference in her
