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boxermc2 
3:23pm, September 25, 2009
I have been plagued with stomach issues, namely diarrhea, for two years. My I.D. Doc swears it isn’t the meds I’m on and yet everyone I know who is on the same regimen has the same issue to a greater or lesser degree.
Today at lunch time, two miles into a three mile walk in a park, I lost complete control. With nothing but my t-shirt and some t.p. I stood inside of a filthy porto john and cleaned myself off to the best of my ability.
My job is such that I can’t simply take time off, especially in this economy. So here I sit, at my desk, commando I might ad, wondering if it is all worth it?
I’m tired of being sick. I think we are fooling ourselves into believing we are like everyone else. The fact is; we aren’t.
I’ve lived through two bouts of cancer and now this. I think cancer was easier. At least you could talk about it and people would be empathetic.
This sucks.
Comments
About three years ago a family moved into our neighborhood.
Not full time, as we live in a summer resort town at the beach. They lived
about 40 miles west most of the time, but when they were here, it was always great to be around them.
I took an instant liking to them and genuinely enjoyed their company. They liked me and
my partner, Tommy as well.
Sadly, today Anne Claire passed away from a blood clot, post knee replacement
surgery at a very young age. Why does this happen to all the nice people?
I didn’t get to know Anne Claire as well as I would have liked, but we live in a small town where everyone knows everyone mostly through summer cookouts, the beach and that sort of thing.
Anne Claire and Jack have a handicapped daughter; and I a handicapped brother, with somewhat similar afflictions. We bonded immediately.
There is no way to understand how or why we lose people sometimes.
I will miss this nice lady, her smile, her energy and the sparkle in her eyes.
Godspeed Anne Claire, until we meet again.
Comments
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Nice sentiment Scott, but she's on a better plane.
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Sorry to hear about your neighbour. She sounds like an amazing person. Very sad.
Well, it has been some time since I wrote in my journal. The reason being, I haven’t needed to. Been doing well for the most part, but lately, there has been this nagging voice in my head when I see myself in the mirror. Could it be that the meds are starting to change my body? I know I’ve lost weight, but then again, I am very active. If I’m not walking or running I’m biking.
So when then, when I look in the mirror to I feel as though I’m becoming the incredible shrinking Scotty?
I guess time will tell.
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Goal Updated
Sorry to hear that you are having such a difficult time at the moment B. HUGS. Although your doctor says it isn't the meds, if you have a feeling that it IS the meds, then maybe you could ask to switch to see if it makes any difference? I'm really sorry that you had to go through that experience today... it must have been very distressing and upsetting. Hope you're OK.
centaur77
Scott- I'm so sorry to hear that, but as you say, I know exactly how you feel. I do in fact think it is that cocktail. Since I went on the Isentress instead of Norvir, the problem's lessend. Life is going to go on and you with it. You've beaten cancer twice, this should be a piece of cake for you! Stay strong, I know you can. And yes, this is all worth it- I felt just like you not long ago, ready to stop meds. Think though, isn't that a little selfish, what about the ones left behind? As positive as you are all the time, don't let this get you down. Take care of yourself.
tim2218
I should of said they took me off Norvir and Reyataz and I do Isentress 2x day instead and 1x of Truvada. Might want to consider changing too
tim2218
If you love or are loved, its worth it. If you are a friend to anyone, its worth it. If you ever laugh, its worth it.
meadll
Thanks guys, feeling a bit better. I'll be back to cheerleader status in a few hours.
boxermc2
B,
Love the new pic! I hope you are feeling some relief at this time re: diarrhea. I have been soley on Atripla for the hiv and Hep B for three years. It was back in May, after I divorced myself from the VA Healthcare farce and stopped pain mgmnt. with them (properly stepped-off pain RX), I have had chronic diarrhea, with my ID Dr. sure it is not the Atripla. Have had Endo/Colonoscpmies, Barium--you name it with the GI Spec. she referred me to. I have a follow-up Dec 18, but am losing patience, called his RN this morning and she said she emailed him with my ph. # and of course, he did not call back today. Just doing my best to stay out of the ER or Hospital, staying hydrated. Please let me know if you found out what it is/was.
Peace!
namnibor